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MoMMA's Voices: Patient Family Partners and Lived Experience Integration

Award Number: NU01DD000044
ORGANIZATION: NATIONAL CENTER ON BIRTH DEFECTS AND DEVELOPMENTAL DISABILITIES (NCBDDD)
OPDIV: CDC
AWARD CLASS: DISCRETIONARY
AWARD ACTIVITY TYPE: HEALTH SERVICES
PERIOD OF PERFORMANCE START DATE: 09/30/2023
PERIOD OF PERFORMANCE END DATE: 09/29/2028

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MoMMA's Voices: Patient Family Partners and Lived Experience Integration - Patient Family Partners and Lived EXperience Integration Series (LEXIS) Project Abstract Background Against the backdrop of increasing rates of severe maternal and infant morbidity and mortality in the United States, with women of color disproportionately affected and a high degree of preventability, there has also been an increasing desire to integrate patient perspective in this work. The teams and organizations seeking to measure and evaluate the contributing factors, improve patient safety and quality, drive research relevant to patient outcomes, and address previously unmet conditions such as maternal mental health may benefit from fully engaging those with lived experiences. However strong the desire to engage patients in this work or the belief that this missing perspective could lead to better outcomes, there remain gaps in how organizations should effectively engage patients and their family members, where to find patient partners who are emotionally ready and oriented for collaborative and often challenging work, and how to measure the effectiveness of this strategy. Purpose MoMMA’s Voices, a coalition of maternal and infant health patient advocacy organizations managed by the Preeclampsia Foundation, proposes the Patient Family Partners and Lived EXperience Integration Series (LEXIS) Program to authentically and effectively integrate patient family partners on maternal mortality review committees (MMRCs), in maternal safety and quality improvement initiatives at the state and local level, on research study teams, and in hospitals, public health clinics, and other settings where healthcare is delivered with the intention that these strategies will improve outcomes for pregnant and postpartum people. The program includes the primary strategies of 1) recruitment and training of those with lived experiences; 2) technical training and culture development for the entities seeking to engage lived experiences; 3) scaling both strategies for widespread adoption; 4) dynamic measurement and evaluation of both strategies to make rapid programmatic improvements and gauge direct impact on improving outcomes for the target population of pregnant and postpartum people. Outcomes Measurement This proposal seeks to significantly expand the reach, effectiveness, and curriculum offerings of these two lived experience integration programs aimed at reducing maternal and infant mortality and morbidity. Specifically, outcomes include increasing the currently limited program to reach new audiences, including MMRCs, more hospitals, and research centers, among others; and create an evidence base for improved outcomes for pregnant and postpartum people derived from LEXIS engagement. Our analytics partner will lead extensive evaluation work to improve the effectiveness of these programs and to disseminate data about how effective Patient Family Partner engagement can impact maternal health programmatic and systems-level outcomes.


Issue Date FY	Funding FY	Legal Entity Name	Legal Entity Address	Legal Entity City	Legal Entity State	Legal Entity Zip Code	Legal Entity COUNTY	Legal Entity COUNTRY	Assistance Listing	Award Code	Budget Year	Action Date	Action Type	Action Amount

Issue Date FY: 2026 ( Subtotal = $0 )
2026	2025	PREECLAMPSIA FOUNDATION	3840 W EAU GALLIE BLVD STE 104	MELBOURNE	FL	32934	BREVARD	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	01	3	12/9/2025	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2026	2024	PREECLAMPSIA FOUNDATION	3840 W EAU GALLIE BLVD STE 104	MELBOURNE	FL	32934	BREVARD	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	01	3	12/9/2025	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2026	2023	PREECLAMPSIA FOUNDATION	3840 W EAU GALLIE BLVD STE 104	MELBOURNE	FL	32934	BREVARD	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	01	3	12/9/2025	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
														Subtotal = $0

Issue Date FY: 2025 ( Subtotal = $260,000 )
2025	2025	PREECLAMPSIA FOUNDATION	3840 W EAU GALLIE BLVD STE 104	MELBOURNE	FL	32934	BREVARD	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	3	9/24/2025	NON-COMPETING CONTINUATION	$260,000
2025	2024	PREECLAMPSIA FOUNDATION	3840 W EAU GALLIE BLVD STE 104	MELBOURNE	FL	32934	BREVARD	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	02	2	6/25/2025	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2025	2024	PREECLAMPSIA FOUNDATION	3840 W EAU GALLIE BLVD STE 104	MELBOURNE	FL	32934	BREVARD	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	3	9/24/2025	NON-COMPETING CONTINUATION	$0
2025	2024	PREECLAMPSIA FOUNDATION	3840 W EAU GALLIE BLVD STE 104	MELBOURNE	FL	32934	BREVARD	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	01	2	3/31/2025	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2025	2023	PREECLAMPSIA FOUNDATION	3840 W EAU GALLIE BLVD STE 104	MELBOURNE	FL	32934	BREVARD	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	02	2	6/25/2025	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2025	2023	PREECLAMPSIA FOUNDATION	3840 W EAU GALLIE BLVD STE 104	MELBOURNE	FL	32934	BREVARD	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	01	2	3/31/2025	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2025	2023	PREECLAMPSIA FOUNDATION	3840 W EAU GALLIE BLVD STE 104	MELBOURNE	FL	32934	BREVARD	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	3	9/24/2025	NON-COMPETING CONTINUATION	$0
														Subtotal = $260,000

Issue Date FY: 2024 ( Subtotal = $260,000 )
2024	2024	PREECLAMPSIA FOUNDATION	3840 W EAU GALLIE BLVD STE 104	MELBOURNE	FL	32934	BREVARD	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	2	8/26/2024	NON-COMPETING CONTINUATION	$260,000
2024	2023	PREECLAMPSIA FOUNDATION	3840 W EAU GALLIE BLVD STE 104	MELBOURNE	FL	32934	BREVARD	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	01	1	12/20/2023	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2024	2023	PREECLAMPSIA FOUNDATION	3840 W EAU GALLIE BLVD STE 104	MELBOURNE	FL	32934	BREVARD	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	2	8/26/2024	NON-COMPETING CONTINUATION	$0
														Subtotal = $260,000

Issue Date FY: 2023 ( Subtotal = $550,000 )
2023	2023	PREECLAMPSIA FOUNDATION	3840 W EAU GALLIE BLVD STE 104	MELBOURNE	FL	32934	BREVARD	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	1	9/6/2023	NEW	$550,000
														Subtotal = $550,000

Grand Total All Awards = $1,070,000

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MoMMA's Voices: Patient Family Partners and Lived Experience Integration

Award Number: NU01DD000044

ORGANIZATION: NATIONAL CENTER ON BIRTH DEFECTS AND DEVELOPMENTAL DISABILITIES (NCBDDD)

OPDIV: CDC

AWARD CLASS: DISCRETIONARY

AWARD ACTIVITY TYPE: HEALTH SERVICES

PERIOD OF PERFORMANCE START DATE: 09/30/2023

PERIOD OF PERFORMANCE END DATE: 09/29/2028

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