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Virginia Pregnant People-Infant Linked Longitudinal Surveillance

Award Number: NU01DD000012
ORGANIZATION: NATIONAL CENTER ON BIRTH DEFECTS AND DEVELOPMENTAL DISABILITIES (NCBDDD)
OPDIV: CDC
AWARD CLASS: DISCRETIONARY
AWARD ACTIVITY TYPE: HEALTH SERVICES
PERIOD OF PERFORMANCE START DATE: 09/30/2023
PERIOD OF PERFORMANCE END DATE: 09/29/2027

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Virginia Pregnant People-Infant Linked Longitudinal Surveillance - Congenital Cytomegalovirus (cCMV), is the number one non-genetic cause of hearing loss. 1 in 200 children are born with CMV each year, however only 9% of pregnant women who are aware of CMV. Hearing targeted congenital Cytomegalovirus (cCMV) screening has been mandated in Virginia since September 1, 2020, with statutory responsibility under the Virginia Department of Health. This mandate implies that any child who fails the final hearing screen at birth should receive a buccal swab for CMV screening. Virginia has attempted to increase awareness and education around CMV since the legislative mandate, however, has identified a gap in that many prenatal providers are not discussing prevention tips with pregnant women or women of childbearing age. The hearing targeted CMV screening program is under the Office of Family Health services and the Virginia Early Hearing Detection and Intervention Program (VA EHDI). The mission of VA EHDI program is to reduce the burden of communication disorders resulting from hearing loss. The Virginia Early Hearing Detection and Intervention Information System (EHDI-IS) is integrated in a robust, web-based surveillance system which combines multiple state-mandated functions including electronic birth certificate, certifiable birth events, newborn hearing screening, cCMV screening, birth defects reporting, and electronic death registration. This system also identifies matches, collects, and reports data on all individual unduplicated occurrent births in the Commonwealth. One identified gap for the EHDI-IS includes the ability to capture long-term disease and treatment outcomes for children confirmed with cCMV. The purpose of this grant is to expand surveillance efforts to identify longitudinal data regarding cCMV to ensure timely reporting of exposures and outcomes that impact pregnant people and infants. With component B of this funding opportunity, VA EHDI will focus on expanding its long-term statewide cCMV follow-up after a confirmed diagnosis to identify disease outcomes and treatment trajectories. CCMV outcomes to be evaluated include co-occurring symptoms, treatment outcomes, assessing the differences in children who received treatment vs. those that did not, and existing developmental delays attributed to cCMV. This project will additionally retrospectively identify prenatal exposures to inform prenatal education outreach initiatives. The project will achieve the outcome goals using 4 strategies: Data Information System Optimization, Stakeholder Education and Engagement, Data Analysis and Data Dissemination, and Technical Assistance and Quality Improvement.


Issue Date FY	Funding FY	Legal Entity Name	Legal Entity Address	Legal Entity City	Legal Entity State	Legal Entity Zip Code	Legal Entity COUNTY	Legal Entity COUNTRY	Assistance Listing	Award Code	Budget Year	Action Date	Action Type	Action Amount

Issue Date FY: 2026 ( Subtotal = $487,442 )
2026	2026	VIRGINIA DEPARTMENT OF HEALTH	109 GOVERNOR ST	RICHMOND	VA	23219	RICHMOND CITY	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	4	8/24/2026	NON-COMPETING CONTINUATION	$487,442
2026	2025	VIRGINIA DEPARTMENT OF HEALTH	109 GOVERNOR ST	RICHMOND	VA	23219	RICHMOND CITY	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	01	3	7/1/2026	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2026	2025	VIRGINIA DEPARTMENT OF HEALTH	109 GOVERNOR ST	RICHMOND	VA	23219	RICHMOND CITY	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	4	8/24/2026	NON-COMPETING CONTINUATION	$0
2026	2024	VIRGINIA DEPARTMENT OF HEALTH	109 GOVERNOR ST	RICHMOND	VA	23219	RICHMOND CITY	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	4	8/24/2026	NON-COMPETING CONTINUATION	$0
2026	2024	VIRGINIA DEPARTMENT OF HEALTH	109 GOVERNOR ST	RICHMOND	VA	23219	RICHMOND CITY	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	01	3	7/1/2026	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2026	2023	VIRGINIA DEPARTMENT OF HEALTH	109 GOVERNOR ST	RICHMOND	VA	23219	RICHMOND CITY	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	01	3	7/1/2026	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2026	2023	VIRGINIA DEPARTMENT OF HEALTH	109 GOVERNOR ST	RICHMOND	VA	23219	RICHMOND CITY	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	4	8/24/2026	NON-COMPETING CONTINUATION	$0
														Subtotal = $487,442

Issue Date FY: 2025 ( Subtotal = $487,442 )
2025	2025	VIRGINIA DEPARTMENT OF HEALTH	109 GOVERNOR ST	RICHMOND	VA	23219	RICHMOND CITY	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	3	9/17/2025	NON-COMPETING CONTINUATION	$487,442
2025	2024	VIRGINIA DEPARTMENT OF HEALTH	109 GOVERNOR ST	RICHMOND	VA	23219	RICHMOND CITY	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	3	9/17/2025	NON-COMPETING CONTINUATION	$0
2025	2024	VIRGINIA DEPARTMENT OF HEALTH	109 GOVERNOR ST	RICHMOND	VA	23219	RICHMOND CITY	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	01	2	3/28/2025	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2025	2023	VIRGINIA DEPARTMENT OF HEALTH	109 GOVERNOR ST	RICHMOND	VA	23219	RICHMOND CITY	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	3	9/17/2025	NON-COMPETING CONTINUATION	$0
2025	2023	VIRGINIA DEPARTMENT OF HEALTH	109 GOVERNOR ST	RICHMOND	VA	23219	RICHMOND CITY	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	01	2	3/28/2025	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
														Subtotal = $487,442

Issue Date FY: 2024 ( Subtotal = $487,442 )
2024	2024	VIRGINIA DEPARTMENT OF HEALTH	109 GOVERNOR ST	RICHMOND	VA	23219	RICHMOND CITY	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	2	8/13/2024	NON-COMPETING CONTINUATION	$487,442
2024	2023	VIRGINIA DEPARTMENT OF HEALTH	109 GOVERNOR ST	RICHMOND	VA	23219	RICHMOND CITY	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	2	8/13/2024	NON-COMPETING CONTINUATION	$0
2024	2023	VIRGINIA DEPARTMENT OF HEALTH	109 GOVERNOR ST	RICHMOND	VA	23219	RICHMOND CITY	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	02	1	5/15/2024	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2024	2023	COMMONWEALTH OF VIRGINIA STATE BOARD OF HEALTH	109 GOVERNOR ST	RICHMOND	VA	23219	RICHMOND CITY	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	01	1	11/21/2023	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
														Subtotal = $487,442

Issue Date FY: 2023 ( Subtotal = $507,752 )
2023	2023	COMMONWEALTH OF VIRGINIA STATE BOARD OF HEALTH	109 GOVERNOR ST	RICHMOND	VA	23219	RICHMOND CITY	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	1	8/31/2023	NEW	$507,752
														Subtotal = $507,752

Grand Total All Awards = $1,970,078

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Virginia Pregnant People-Infant Linked Longitudinal Surveillance

Award Number: NU01DD000012

ORGANIZATION: NATIONAL CENTER ON BIRTH DEFECTS AND DEVELOPMENTAL DISABILITIES (NCBDDD)

OPDIV: CDC

AWARD CLASS: DISCRETIONARY

AWARD ACTIVITY TYPE: HEALTH SERVICES

PERIOD OF PERFORMANCE START DATE: 09/30/2023

PERIOD OF PERFORMANCE END DATE: 09/29/2027

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