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Increasing Public Awareness and Provider Education About Primary Immunodeficiency Disease

Award Number: NE11CD000002
ORGANIZATION: CENTERS FOR DISEASE CONTROL AND PREVENTION
OPDIV: CDC
AWARD CLASS: DISCRETIONARY
AWARD ACTIVITY TYPE: SCIENTIFIC/HEALTH RESEARCH (INCLUDES SURVEYS)
PERIOD OF PERFORMANCE START DATE: 08/01/2023
PERIOD OF PERFORMANCE END DATE: 07/31/2028

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Increasing Public Awareness and Provider Education About Primary Immunodeficiency Disease - The purpose of this program is to continue to strengthen the nation’s capacity to carry out public health activities in Primary Immunodeficiency (PI) by increasing physician knowledge and public health awareness through educational programs for PI, and to build upon the successes of the program over the last three decades. The primary objective of this effort is to disseminate educational information on a national level to healthcare providers, educators, third-party payers, impacted families, and others who may help to expedite clinical recognition and improve health outcomes for individuals living with PI. The proposed program will ultimately achieve a marked increase in the number of people appropriately diagnosed with PI, and an increase in access to care for those individuals properly diagnosed, resulting in improved health outcomes and quality of life. To accomplish these objectives, the proposed program will lead to improved integration of PI awareness into clinical care, expedited clinical recognition of PI, and increased community and healthcare provider knowledge of PI. These aims will be achieved through the development and implementation of PI focused educational materials and displays, provider engagement in educational opportunities, an increase in the skills and knowledge of the healthcare workforce regarding PI, and the use of evaluation and quality improvement process findings to guide appropriate action. The following strategies and activities will be utilized to accomplish the intended outcomes: (1) provide financial assistance for planning, design, and implementation of educational materials and displays, including a national public service advertising campaign; (2) disseminate educational information on a national level to public and private healthcare providers, clinical and school nurses, educators, third-party payers, impacted families, and others; (3) form partnerships with the healthcare community; and (4) conduct regular evaluation and quality improvement efforts. To expedite identification and diagnosis of PI, two additional initiatives will be implemented: (1) integration of a proprietary software that has been and is being utilized with healthcare databases to identify patients with a probable underlying PI and (2) a genetic sequencing program to identify the underlying cause of a PI and better bridge genotype/phenotype awareness. We will continue to strengthen and expand existing programs that have proven effective and implement new and promising initiatives, driving programs forward to ensure the best possible outcomes for patients living with PI.


Issue Date FY	Funding FY	Legal Entity Name	Legal Entity Address	Legal Entity City	Legal Entity State	Legal Entity Zip Code	Legal Entity COUNTY	Legal Entity COUNTRY	Assistance Listing	Award Code	Budget Year	Action Date	Action Type	Action Amount

Issue Date FY: 2026 ( Subtotal = $3,000,000 )
2026	2026	THE JEFFREY MODELL FOUNDATION, INC.	780 3rd Ave Fl 47	New York	NY	10017	NEW YORK	USA	Centers for Research and Demonstration for Health Promotion and Disease Prevention	00	4	8/3/2026	NON-COMPETING CONTINUATION	$3,000,000
2026	2026	THE JEFFREY MODELL FOUNDATION, INC.	780 3rd Ave Fl 47	New York	NY	10017	NEW YORK	USA	Centers for Research and Demonstration for Health Promotion and Disease Prevention	01	4	8/13/2026	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2026	2025	THE JEFFREY MODELL FOUNDATION, INC.	780 3rd Ave Fl 47	New York	NY	10017	NEW YORK	USA	Centers for Research and Demonstration for Health Promotion and Disease Prevention	00	4	8/3/2026	NON-COMPETING CONTINUATION	$0
2026	2025	THE JEFFREY MODELL FOUNDATION, INC.	780 3rd Ave Fl 47	New York	NY	10017	NEW YORK	USA	Centers for Research and Demonstration for Health Promotion and Disease Prevention	01	4	8/13/2026	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2026	2024	THE JEFFREY MODELL FOUNDATION, INC.	780 3rd Ave Fl 47	New York	NY	10017	NEW YORK	USA	Centers for Research and Demonstration for Health Promotion and Disease Prevention	01	4	8/13/2026	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2026	2024	THE JEFFREY MODELL FOUNDATION, INC.	780 3rd Ave Fl 47	New York	NY	10017	NEW YORK	USA	Centers for Research and Demonstration for Health Promotion and Disease Prevention	00	4	8/3/2026	NON-COMPETING CONTINUATION	$0
2026	2023	THE JEFFREY MODELL FOUNDATION, INC.	780 3rd Ave Fl 47	New York	NY	10017	NEW YORK	USA	Centers for Research and Demonstration for Health Promotion and Disease Prevention	01	4	8/13/2026	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2026	2023	THE JEFFREY MODELL FOUNDATION, INC.	780 3rd Ave Fl 47	New York	NY	10017	NEW YORK	USA	Centers for Research and Demonstration for Health Promotion and Disease Prevention	00	4	8/3/2026	NON-COMPETING CONTINUATION	$0
														Subtotal = $3,000,000

Issue Date FY: 2025 ( Subtotal = $3,000,000 )
2025	2025	JEFFREY MODELL FOUNDATION	780 3RD AVE	NEW YORK	NY	10017	NEW YORK	USA	Centers for Research and Demonstration for Health Promotion and Disease Prevention	00	3	8/4/2025	NON-COMPETING CONTINUATION	$3,000,000
2025	2024	JEFFREY MODELL FOUNDATION	780 3RD AVE	NEW YORK	NY	10017	NEW YORK	USA	Centers for Research and Demonstration for Health Promotion and Disease Prevention	00	3	8/4/2025	NON-COMPETING CONTINUATION	$0
2025	2023	JEFFREY MODELL FOUNDATION	780 3RD AVE	NEW YORK	NY	10017	NEW YORK	USA	Centers for Research and Demonstration for Health Promotion and Disease Prevention	00	3	8/4/2025	NON-COMPETING CONTINUATION	$0
														Subtotal = $3,000,000

Issue Date FY: 2024 ( Subtotal = $3,000,000 )
2024	2024	JEFFREY MODELL FOUNDATION	780 3RD AVE	NEW YORK	NY	10017	NEW YORK	USA	Centers for Research and Demonstration for Health Promotion and Disease Prevention	00	2	7/29/2024	NON-COMPETING CONTINUATION	$3,000,000
2024	2023	JEFFREY MODELL FOUNDATION	780 3RD AVE	NEW YORK	NY	10017	NEW YORK	USA	Centers for Research and Demonstration for Health Promotion and Disease Prevention	00	2	7/29/2024	NON-COMPETING CONTINUATION	$0
														Subtotal = $3,000,000

Issue Date FY: 2023 ( Subtotal = $3,000,000 )
2023	2023	MODELL, JEFFREY FOUNDATION, THE	780 Third Avenue, 47th Floor	New York	NY	10017	NEW YORK	USA	Centers for Research and Demonstration for Health Promotion and Disease Prevention	00	1	7/27/2023	NEW	$3,000,000
														Subtotal = $3,000,000

Grand Total All Awards = $12,000,000

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Increasing Public Awareness and Provider Education About Primary Immunodeficiency Disease

Award Number: NE11CD000002

ORGANIZATION: CENTERS FOR DISEASE CONTROL AND PREVENTION

OPDIV: CDC

AWARD CLASS: DISCRETIONARY

AWARD ACTIVITY TYPE: SCIENTIFIC/HEALTH RESEARCH (INCLUDES SURVEYS)

PERIOD OF PERFORMANCE START DATE: 08/01/2023

PERIOD OF PERFORMANCE END DATE: 07/31/2028

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