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Acceptability, Feasibility, and Appropriateness of Digital Autism Screening, Clinical Decision Support, and Research Engagement for Black Children

Award Number: K08HS029692
ORGANIZATION: AGENCY FOR HEALTH CARE RESEARCH AND QUALITY
OPDIV: AHRQ
AWARD CLASS: DISCRETIONARY
AWARD ACTIVITY TYPE: TRAINING/TRAINEESHIP
PERIOD OF PERFORMANCE START DATE: 05/01/2024
PERIOD OF PERFORMANCE END DATE: 04/30/2029

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Acceptability, Feasibility, and Appropriateness of Digital Autism Screening, Clinical Decision Support, and Research Engagement for Black Children - PROJECT SUMMARY/ABSTRACT Early detection of autism and delivery of evidence-based services are crucial because they can lessen the degree of long-term disability associated with the condition. Black children however, continue to experience disparities in access to services due, in part, to inaccurate screening, lack of referrals for autism evaluations, and underrepresentation of culturally and linguistically diverse participants in research samples. The proposed study will address important gaps in autism research. Few studies have been conducted to understand the feasibility, appropriateness, and acceptability of digital screening tools from the perspective of culturally and linguistically diverse end-users. There is little knowledge of how the cultural appropriateness of provider communication about screening results and clinical decision support influences Black caregivers’ decisions to link their child to services. Moreover, information on determinants of culturally and linguistically diverse children’s recruitment and retention in autism studies is lacking. These gaps will be addressed in the proposed study through three aims. The first aim is to describe acceptability, feasibility, and appropriateness of communication about screening results to Black families within the context of clinical decision support. The second aim will explore the acceptability, feasibility, and appropriateness of a digital autism screener for Black families. The third aim is to identify determinants of Black caregivers’ enrollment and continued engagement in autism studies of digital screening tools. Dr. Fannin is an investigator looking to expand her capacity for independent research. She has established an interdisciplinary mentoring team with expertise in psychiatry, biology, education, and population health science. Dr. Fannin’s career development plan capitalizes on the mentoring team’s guidance for selection of didactic training and professional development to address gaps in research skills, as well as their individualized mentoring to apply what she has learned to the research. The proposed research contributes to the knowledge base concerning equitable identification and access to autism services, as well as strategies to help generalize evidence-based intervention to culturally and linguistically diverse populations. Through examination of how Black caregivers believe providers can customize screening procedures, improve conversations about screening results, and promote study recruitment and retention, the resultant data can foster development of culturally responsive clinical procedures to improve the quality of life for autistic children and their families.


Issue Date FY	Funding FY	Legal Entity Name	Legal Entity Address	Legal Entity City	Legal Entity State	Legal Entity Zip Code	Legal Entity COUNTY	Legal Entity COUNTRY	Assistance Listing	Award Code	Budget Year	Action Date	Action Type	Action Amount

Issue Date FY: 2024 ( Subtotal = $152,250 )
2024	2024	NORTH CAROLINA CENTRAL UNIVERSITY	1801 FAYETTEVILLE ST	DURHAM	NC	27707	DURHAM	USA	Research on Healthcare Costs, Quality and Outcomes	000	1	4/25/2024	NEW	$152,250
														Subtotal = $152,250

Grand Total All Awards = $152,250

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Acceptability, Feasibility, and Appropriateness of Digital Autism Screening, Clinical Decision Support, and Research Engagement for Black Children

Award Number: K08HS029692

ORGANIZATION: AGENCY FOR HEALTH CARE RESEARCH AND QUALITY

OPDIV: AHRQ

AWARD CLASS: DISCRETIONARY

AWARD ACTIVITY TYPE: TRAINING/TRAINEESHIP

PERIOD OF PERFORMANCE START DATE: 05/01/2024

PERIOD OF PERFORMANCE END DATE: 04/30/2029

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