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Validation of Quality Measures for Patient-Centered Cancer Communication in Rwanda

Award Number: K08CA279874
ORGANIZATION: NATIONAL CANCER INSTITUTE
OPDIV: NIH
AWARD CLASS: DISCRETIONARY
AWARD ACTIVITY TYPE: TRAINING/TRAINEESHIP
PERIOD OF PERFORMANCE START DATE: 02/13/2024
PERIOD OF PERFORMANCE END DATE: 01/31/2029

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Validation of Quality Measures for Patient-Centered Cancer Communication in Rwanda - PROJECT SUMMARY/ABSTRACT The burden of cancer is rising in Africa and mortality rates are high. A majority (70-80%) of patients present at advanced stages, and cancer care incurs substantial financial costs for families and healthcare systems. Even for potentially curable patients, effective treatment delivery is hampered by low adherence and retention in care. In this context, patient-centered communication (PCC) offers an immediate opportunity to improve treatment outcomes, optimize resource utilization, and alleviate suffering. PCC means responding to individual patients’ perspectives and needs, involving patients in decision making, and providing emotional support. Patients and clinicians in many African settings, including in Rwanda, have identified critical deficits in PCC and have called for a cultural shift toward patient-centered care. Empowering patients through patient-reported measures, and clinicians through communication skills training, has the potential for broadly impactful improvements in PCC. A key barrier to progress in PCC research in African cancer care is the absence of context-appropriate measures of communication quality. Currently, no measures of clinical communication have been validated in an African cancer care context. This proposal addresses this gap by adapting, validating, and piloting a patient survey of communication quality in Rwanda. Specifically, Dr. DeBoer aims to (1) adapt an existing patient survey, the Patient-Centered Communication in Cancer Care (PCC-Ca), based on input from Rwandan stakeholders; (2) establish psychometric properties of the adapted PCC patient survey in Rwanda; and (3) conduct a feasibility pilot trial of the adapted PCC patient survey to evaluate a communication training intervention for clinicians in Rwanda. To achieve these aims, Dr. DeBoer will leverage her existing research partnership at Butaro Hospital in Rwanda and her prior work adapting a PCC clinician training intervention for the Rwandan context. The proposed research will result in context-appropriate measures that can be used to evaluate a PCC clinician training intervention in a future R01 cluster randomized trial in Rwanda. This K08 award will support advanced training in implementation science and career development in global oncology, organized around four training goals: (1) stakeholder-engaged research; (2) program evaluation; (3) interventional trial design; and (4) career development in global oncology. For each goal, Dr. DeBoer will complete coursework, fulfilling the UCSF Certificate in Implementation Science, as well as mentored tutorials and experiential learning from research aims. An exceptional multidisciplinary team of mentors with an optimal balance of complementary expertise will guide Dr. DeBoer in achieving her goals. This training will position Dr. DeBoer for a successful independent research career as an implementation scientist and leader in the emerging academic field of global oncology, advancing Dr. DeBoer’s ultimate objective of promoting global cancer equity by improving the quality of care for patients in East Africa and beyond. 1


Issue Date FY	Funding FY	Legal Entity Name	Legal Entity Address	Legal Entity City	Legal Entity State	Legal Entity Zip Code	Legal Entity COUNTY	Legal Entity COUNTRY	Assistance Listing	Award Code	Budget Year	Action Date	Action Type	Action Amount

Issue Date FY: 2026 ( Subtotal = $267,826 )
2026	2026	REGENTS OF THE UNIVERSITY OF CALIFORNIA, SAN FRANCISCO, THE	1855 FOLSOM ST STE 425	SAN FRANCISCO	CA	94103	SAN FRANCISCO	USA	Cancer Research Manpower	000	3	1/9/2026	NON-COMPETING CONTINUATION	$267,826
														Subtotal = $267,826

Issue Date FY: 2025 ( Subtotal = $267,911 )
2025	2025	REGENTS OF THE UNIVERSITY OF CALIFORNIA, SAN FRANCISCO, THE	1855 FOLSOM ST STE 425	SAN FRANCISCO	CA	94103	SAN FRANCISCO	USA	Cancer Research Manpower	000	2	12/23/2024	NON-COMPETING CONTINUATION	$267,911
														Subtotal = $267,911

Issue Date FY: 2024 ( Subtotal = $269,653 )
2024	2024	REGENTS OF THE UNIVERSITY OF CALIFORNIA, SAN FRANCISCO, THE	1855 FOLSOM ST STE 425	SAN FRANCISCO	CA	94103	SAN FRANCISCO	USA	Cancer Research Manpower	000	1	2/13/2024	NEW	$269,653
														Subtotal = $269,653

Grand Total All Awards = $805,390

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Validation of Quality Measures for Patient-Centered Cancer Communication in Rwanda

Award Number: K08CA279874

ORGANIZATION: NATIONAL CANCER INSTITUTE

OPDIV: NIH

AWARD CLASS: DISCRETIONARY

AWARD ACTIVITY TYPE: TRAINING/TRAINEESHIP

PERIOD OF PERFORMANCE START DATE: 02/13/2024

PERIOD OF PERFORMANCE END DATE: 01/31/2029

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