Friday, April 25, 2025
4/25/2025
Transition for Youth with Autism and/or Epilepsy Demonstration Projects - TRansition of Autism Care in Metropolitan New York City (TRAC NYC) Long Island Jewish Medical Center, 270-05 76th Avenue, New Hyde Park, NY 11040 PD/PI: Sophia Jan, MD MSHP; Co-PD/PI: Caren Steinway LMSW, MPH Contact Phone: 516-316-2530; Email: sjan1@northwell.edu Total Funds Requested: $2,248,153 (Direct: $$1,857,978; Indirect: $390,175) The TRansition of Autism Care in Metropolitan New York City (TRAC NYC) program aims to improve the transition of autistic youth and young adults from child serving systems to adult servicing systems and life. This program is a response to the critical need for comprehensive and culturally sensitive transition services for autistic individuals, particularly those from linguistically and culturally diverse backgrounds. Led by a multidisciplinary team, including Dr. Jan and Ms. Steinway, TRAC NYC will leverage existing partnerships, resources, and training mechanisms within Northwell Health to enhance care coordination, improve access to services, and promote successful transitions for this population. The program will be implemented in two phases over five years. Phase I, Planning (Year 1), focuses on establishing the foundation for successful implementation. Key activities include finalizing the population and baseline number of autistic youth and young adults, hiring and training the autism Transition Team, identifying Transition Clinical Champions, convening the Advisory Council, developing partnerships, conducting a landscape analysis, identifying barriers and opportunities, developing clinical guidelines, creating autism-specific transition-related training, and adapting the Map Our Life platform. These activities are informed by the Consolidated Framework for Implementation Research (CFIR) and are designed to address the unique needs of autistic individuals and their families. Phase II, Implementation (Years 2-5), will involve adopting and implementing a comprehensive framework for transitioning autistic young adults, refining clinical guidelines and training programs based on feedback, expanding the BEE MINDFUL™ program to adult hospitals in the catchment area, implementing and refining the Map Our Life platform, collecting and reporting data, participating in the National Coordinating Center for Transition (NCCT)-led development of a successful transition measure, participating in NCCT-led data collection and reporting, developing a sustainability plan, and disseminating relevant resources. The program will leverage Northwell Health's organizational resources, including Long Island Jewish Medical Center, North Shore University Hospital, Cohen Children's Medical Center, the Office of Patient and Customer Experience, Business Employee Resource Groups, the Department of Community and Population Health, and the Quantitative Intelligence group, among others. It will also leverage a robust network of social service, care management, and professional organizations, and autistic individuals and their families, for which Dr. Jan and Ms. Steinway have developed though the Pathways to CARE Program, PCORI-funded Future Planning and Well-Being for Individuals with Intellectual Disabilities and Family Caregivers, and the SCANS project. These resources provide essential support for program activities and ensure the sustainability of outcomes beyond the grant period. TRAC NYC's innovative approach to transition care for autistic individuals emphasizes collaboration, cultural competence, and patient-centered care. By addressing the unique needs of this population and leveraging existing resources and partnerships, TRAC NYC aims to improve health outcomes, enhance quality of life, and promote independence for autistic individuals in the metropolitan New York City area and beyond.
HHS’ Tracking Accountability in Government Grants System (TAGGS) website provides access to detailed descriptions of grants, loans, aggregated direct payments and other types of financial assistance awarded by the HHS Operating Divisions (OPDIVs) and the Office of the Secretary Staff Divisions (STAFFDIVs).