Project Title: Family-to-Family Health Information Center (F2F) Applicant: Family Voices Colorado (FVCO) Address: 6700 W Dorado Drive Unit 16, Littleton, Colorado 80123 Project Director: Christy Blakely Contact Phone: (303) 726-2065 Email: christy@familyvoicesco.org Website: https://familyvoicesco.org/ Grant Program Funds Requested: HRSA-22-069 ($96,750 per year) Problem: Nearly a quarter of a million CYSHCN, ages 0 to 18 years, reside in the state of Colorado—roughly one in five of all Coloradan children. Families need more support to know where to begin and how to cope with obstacles; to connect with the best providers and parent networks early and at the right time; to understand how to apply and requirements for services and coverage; and to use data and advocacy to drive systems change. The Colorado population is growing, with nearly a million new residents in the last 10 years, and today there are more diverse families of CYSHCN—with different cultural, race, ethnic, and linguistic backgrounds, experiences, and needs. There is an imperative for culturally and linguistically appropriate information and resources to better serve families. Goals and Objectives: All objectives of the F2F project will be accomplished by May 2027. 1) To increase access to information, education, and training. 10% (min.) increase in families and professionals assisted. 10% increase in training participants who gain CYSHCN knowledge. 85% of families report F2F met their needs, better prepared them for collaboration and shared decision making. Have one annual visit to legislators and the capital. 2) To strengthen family-professional partnerships and strive for equity in access and outcomes. Have four meetings annually of the family-led coalition. Have four reviews of OMB Performance Measures annually. 10% increase in number and type of programs assisted by F2F. 3) To increase culturally competent outreach. Have four meetings annually of the diversity advisory bo
ard. 20% increase in underserved families trained by F2F to partner in decision making. 30% increase in culturally competent materials and information provided by F2F. Methodology: In response to unmet needs, FVCO, a grassroots nonprofit organization run by parents of CYSHCN, provides vitally-needed information, support, navigation, training, and advocacy for families of CYSHCN. The proposed F2F project at FVCO will develop new informational resources, evaluate the impact of its activities, increase family-led advocacy and policy, advance multi-sector collaboration, and increase representation from culturally diverse communities. By May 2027, the F2F project will, annually, assist 1,500 individuals, outreach at 30-40 presentations and trainings and reach 500+ attendees, and reach 5,000+ families through social media. Coordination: FVCO collaborates with over 20 partners across Colorado and accomplishes its work in the languages and means that best serve families, particularly important to many Spanish-speaking families. F2F will establish two new, critically-needed collaborative groups: a family-led coalition and diversity advisory board. These groups will ensure concerns of families, including diverse and underserved families, and service gaps inform advocacy and are utilized to drive real policy change. Evaluation: F2F staff will conduct an evaluation to assess all activities and tools. All F2F interactions will be tracked through an intake form and entered in a HIPAA compliant database. Presentations will be tracked using an outreach form. Families and professionals will complete satisfaction surveys to measure the impact of the project’s services. Key performance measure data will be collected quarterly and monitored for project progress and performance improvement. Population Groups: F2F will benefit all CYSHCN and their families living in Colorado: urban, rural, and underserved.