Raising Special Kids proposes to serve Arizona’s CYSHCN and families to promote optimal health and well-being by advancing a well-functioning system of services in which families and health professional partners in health care decision-making. Goal 1: Assure access to high quality and equitable health services to optimize health and well-being for all Maternal & Child Health Bureau (MCH) populations by advancing a well-functioning system of services in which families and health professionals partner in health care decision-making. Objective 1.1 By May 31, 2027, increase by 10% from baseline number 9,007 to 9,908 the number of families of CYSHCN and professionals who receive information, education, and/or training from the Arizona F2F-HIC (unduplicated numbers). Objective 1.2 Assist 4,000 families to make informed choices. Objective 1.3 Provide 80,000 families and professionals with information through our website, newsletter, listserv, weekly e-news, etc. Objective 1.4 Training and guidance for 3,000 families. Objective 1.5 Training and guidance for 1,000 professionals. Objective 1.6 90% of families with CYSHCN served will report that the information or services received from the Arizona F2F-HIC program helped prepare them to work with those who serve their children. Goal 2: Achieve health equity for MCH populations by addressing health disparities and meeting the needs of diverse and underserved families. Objective 2.1 By May 31, 2027, increase by 10% of baseline number 50 to 55 CYSHCN and families from underrepresented and diverse communities trained to partner at all levels of shared decision making. Objective 2.2 75 outreach activities conducted. Objective 2.3 Outreach to underrepresented populations and communities with 375 families participating in outreach activities across Arizona. Goal 3: Strengthen public health capacity and workforce for MCH by providing education and training for health professionals on working effectively with p
arents/families of CYSHCN. Objective 3.1 By May 31, 2027, increase by 10% of baseline number 111 to 122 the number and types of state agencies/programs and community-based organizations assisted in providing services/information to families of CYSHCN. Objective 3.2 25 partnerships with organizations serving CYSHCN/families will address disparities & emerging health trends. Objective 3.3 50 partner agencies and organizations are staffed with CYSHCN families with expertise in multi-systems of care and collaborating with health professionals. Objective 3.4 125 program activities and meaningful support and 400 collaborative partnerships with organizations serving CYSHCN/families, including 15 activities to engage key stakeholders in MCH Block Grant needs assessment. Objective 3.5 85% of professionals served will report the information or services received from the Arizona F2F-HIC helped prepare them to work better with families of CYSHCN and/or others who serve CYSHCN. Goal 4: CYSHCN and families will be provided with transition support, education, and resources to better navigate the adult health care system and/or long-term care, to make informed choices, and create a well-planned and strategic approach to address the challenges and barriers to CYSHCN’s transition to adulthood. Objective 4.1 Provide educational training, resources and information for 700 parents during workshops and at conferences on transition topics (e.g., Legal Options, Parent Professional Collaboration, Bullying, Transition to Adulthood, and Self-Advocacy). Objective 4.2 94% of families will report they gained useful knowledge about transition to adulthood services. Objective 4.3 Conduct community outreach to 194 underserved CYSHCN at rural transition events, Navajo Nation Parent Conference, Marana Transition Night, Casa Grande Transition Fair, Legal Options when Turning 18, and other workshops/events. Objective 4.4 50 underserved CYSHCN gained access to transition to adulthood health care inf
ormation and resources.