Improving Care for Children and Youth in NH with Trauma and Intellectual and Developmental Disabilities (Project TIDD)
Population to be served and need: Our goal is to improve outcomes for children and youth ages 0-21 with intellectual and developmental disabilities, including autism (IDD) who are affected by trauma, across the state of New Hampshire (NH). We aim to bolster the knowledge and skills of multidisciplinary providers to identify, engage, screen and treat trauma-affected children and youth with IDD. The small size of NH and the expertise and leadership of the proposed team within the trauma and IDD systems will allow our project to have a major impact on state-wide practices and policies. Our catchment area encompasses the entire state of NH, which includes over 10,000 children and youth with IDD. We will also have a special focus on children and youth experiencing the triple intersection of trauma, IDD, and transgender identity, a common co-occurring scenario for the transgender population. Children with IDD, and with IDD and transgender identity, are at higher risk for trauma (e.g., violence, abuse, bullying), have fewer resources available for identification and treatment, and require properly modified and adapted interventions due to the complexity of their symptoms than do those without IDD. Community-based mental health (MH) providers are not adequately prepared to diagnose and treat these populations, and the multi-disciplinary IDD and transgender workforce are not sufficiently knowledgeable about trauma and its effects.
Strategies/evidence-based practices: Our project will focus activities in five “buckets”: 1) Trauma-informed training and consultation to a multi-disciplinary workforce (e.g., pediatricians, IDD providers, residential staff, transgender providers) using the NCTSN produced Road to Recovery as well as newly developed curriculum targeting differential diagnoses and assessment and treatment around the triple intersection of trauma, IDD, and transgender/non-binary identity; 2) Screening and assessment for trauma in IDD and transgender settings and a focus on integrating results into care plans; 3) Implementation of Trauma-Focused CBT; 4) Training in advanced CBT for trauma and IDD and for trauma and LGBTQ to providers already trained in CBT; 5) Implementation of adapted Child-Adult Relationship Enhancement (CARE Connections) for caregivers and other professionals.
Goals and measurable objectives: Our goal is to improve outcomes for children and youth ages 0-21 with IDD who are affected by trauma across the state of NH. By the end of the project, our objectives are to: 1) provide trauma-informed training and ongoing consultation to 395 professionals and staff from multidisciplinary sectors; 2) install screening/assessment and expert care planning within 6 IDD and transgender service settings; 3) deliver TF-CBT training and consultation to 30 MH providers; 4) deliver advanced CBT for IDD and modified TF-CBT for LGBTQ training and consultation to 130 MH providers; 5) deliver CARE Connections to 125 caregivers and other professionals; and 6) convene a multidisciplinary and parent advisory board to guide the project.