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Our Stories, Our Medicine Archives: A Culture Centered Diabetes and Cardiovascular Disease Health Information Interface for Urban American Indian and Alaska Native and Indigenous Communities

Award Number: G08LM013186
ORGANIZATION: NATIONAL LIBRARY OF MEDICINE
OPDIV: NIH
AWARD CLASS: DISCRETIONARY
AWARD ACTIVITY TYPE: SCIENTIFIC/HEALTH RESEARCH (INCLUDES SURVEYS)

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PROJECT SUMMARY/ABSTRACT American Indians and Alaska Natives (AIAN) and Indigenous populations experience disproportionately high rates of diabetes and cardiovascular disease (CVD) and lack access to reliable health care and health information. Traumatic stressors such as racial discrimination and disruptions to social and cultural health traditions are likely to be connected to poor health outcomes including chronic preventable health issues such as diabetes and CVD. For AIAN populations, this link is especially relevant. Centuries of traumatic events have contributed to devastating health outcomes in AIAN communities. Over the last several decades, the role of cultural healing practices has been recognized as an important approach to treating acute as well as chronic health conditions. However, urban AIANs, approximately 70% of the national AIAN population, often lack either cultural or medical resources. Access to online health information, however, can positively impact consumer healthcare both directly and indirectly and offers an opportunity for urban AIANs. The Our Stories, Our Medicine Archive (OSOMA) seeks to leverage web-based access to health information by providing traditional indigenous health knowledge information along with widely available evidence-based and emergent practices for diabetes and CVD specific to AIAN communities. The OSOMA project presents a novel approach to addressing health disparities in urban AIAN communities through locating diabetes and cardiovascular disease information within an interactive community-based participatory digital archive that is created by and for urban AIANs. We propose 4 specific aims: Aim 1: Form and convene a CAB of health sciences librarians, physicians, AIAN health experts, and community members to ensure a culturally responsive approach to the archive and interface design and research process. Aim 2: Conduct content analyses across and within 50 oral history interviews and corresponding archival materials to create culturally relevant health information modules related to diabetes and CVD prevention. Aim 3: Design, develop and launch a community-based participatory digital archive and health information interface centering on traditional indigenous health knowledge about diabetes and CVD with and for urban AIAN individuals. Aim 4: Evaluate the accessibility of health information content, usability of the health information modules and interface, and narrative engagement with the archival and health information materials. Once the interface is launched we will assess the accessibility of content, interface usability, and the extent to which 100 urban AIAN participants engage with narrative content (e.g. stories excerpted from oral histories).


Issue Date FY	Funding FY	Legal Entity Name	Legal Entity Address	Legal Entity City	Legal Entity State	Legal Entity Zip Code	Legal Entity COUNTY	Legal Entity COUNTRY	Assistance Listing	Award Code	Budget Year	Action Date	Action Type	Action Amount

Issue Date FY: 2023 ( Subtotal = $138,304 )
2023	2023	COLORADO SEMINARY	2199 S UNIVERSITY BLVD	DENVER	CO	80210	DENVER	USA	Medical Library Assistance	000	3	9/20/2023	NON-COMPETING CONTINUATION	$138,304
														Subtotal = $138,304

Issue Date FY: 2022 ( Subtotal = $140,501 )
2022	2022	COLORADO SEMINARY	2199 S UNIVERSITY BLVD	DENVER	CO	80210	DENVER	USA	Medical Library Assistance	000	2	8/15/2022	NON-COMPETING CONTINUATION	$140,501
														Subtotal = $140,501

Issue Date FY: 2021 ( Subtotal = $142,500 )
2021	2021	COLORADO SEMINARY	2199 S UNIVERSITY BLVD	DENVER	CO	80210	DENVER	USA	Medical Library Assistance	000	1	9/9/2021	NEW	$142,500
														Subtotal = $142,500

Grand Total All Awards = $421,305

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Our Stories, Our Medicine Archives: A Culture Centered Diabetes and Cardiovascular Disease Health Information Interface for Urban American Indian and Alaska Native and Indigenous Communities

Award Number: G08LM013186

ORGANIZATION: NATIONAL LIBRARY OF MEDICINE

OPDIV: NIH

AWARD CLASS: DISCRETIONARY

AWARD ACTIVITY TYPE: SCIENTIFIC/HEALTH RESEARCH (INCLUDES SURVEYS)

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