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The Feasibility of a Medical Student Mentoring Program to Improve Transition of Care Among Adolescents with Sickle Cell Disease

Award Number: F30HL142311
ORGANIZATION: NATIONAL HEART, LUNG, & BLOOD INSTITUTE
OPDIV: NIH
AWARD CLASS: DISCRETIONARY
AWARD ACTIVITY TYPE: FELLOWSHIP/SCHOLARSHIP/STUDENT LOANS

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Project Summary The highest rates of mortality, acute care encounters, and re-hospitalizations for patients with sickle cell disease (SCD) occur among 18–30 year olds, after the transfer from a pediatric to an adult healthcare provider. Barriers to successful transition from pediatric to adult care include a lack of support, minimal transition planning, providers' lack of time to address transition issues, and disparities in care related to the racial background of the patients. However, effective transition programs for individuals with SCD are lacking. The proposed project aims to address this gap by developing and evaluating the feasibility of a novel transition mentoring program to improve the transition readiness and health outcomes of adolescents and young adults (AYA) with SCD. Guided by the Social-Ecological Model of Adolescent and Young Adult Readiness to Transition (SMART) framework, the intervention will target patient self-management skills, knowledge, and confidence in navigating the adult healthcare system through the specialized peer support offered by a medical student mentor familiar with the pediatric and adult hematology clinics. Medical students were chosen as mentors because they uniquely have specialized knowledge of the healthcare system and serve as similar-aged “peers” who can offer developmentally appropriate support to the patient. In Phase 1, we will conduct individual interviews to identify patient barriers, expectations, fears, and perspectives about transitioning to adult care to be addressed by the medical student mentoring program (Aim 1). These interviews will inform the mentoring intervention content. In Phase 2, we will conduct a pilot feasibility study of the medical student mentoring program (Aim 2) and examine acceptability, usability, and satisfaction with the intervention by AYA with SCD and mentors. We will examine the impact of the intervention on patient outcomes (transition readiness, health-related quality of life, and medication adherence) and medical student outcomes (attitudes towards chronic illness and empathy) (Exploratory Aim). We expect that the program will provide benefit for both the AYA patients and the medical student mentors.


Issue Date FY	Funding FY	Legal Entity Name	Legal Entity Address	Legal Entity City	Legal Entity State	Legal Entity Zip Code	Legal Entity COUNTY	Legal Entity COUNTRY	Assistance Listing	Award Code	Budget Year	Action Date	Action Type	Action Amount

Issue Date FY: 2023 ( Subtotal = -$5,108 )
2023	2022	RUTGERS, THE STATE UNIVERSITY OF NEW JERSEY	195 LITTLE ALBANY ST	NEW BRUNSWICK	NJ	08903	MIDDLESEX	USA	Translation and Implementation Science Research for Heart, Lung, Blood Diseases, and Sleep Disorders	001	4	5/15/2023	SUPPLEMENT FOR EXPANSION	-$2,500
2023	2021	RUTGERS, THE STATE UNIVERSITY OF NEW JERSEY	195 LITTLE ALBANY ST	NEW BRUNSWICK	NJ	08903	MIDDLESEX	USA	Translation and Implementation Science Research for Heart, Lung, Blood Diseases, and Sleep Disorders	000	4	5/15/2023	NON-COMPETING CONTINUATION	-$2,608
														Subtotal = -$5,108

Issue Date FY: 2022 ( Subtotal = -$5,681 )
2022	2022	RUTGERS, THE STATE UNIVERSITY OF NEW JERSEY	195 LITTLE ALBANY ST	NEW BRUNSWICK	NJ	08903	MIDDLESEX	USA	Translation and Implementation Science Research for Heart, Lung, Blood Diseases, and Sleep Disorders	002	4	8/31/2022	SUPPLEMENT FOR EXPANSION	$0
2022	2022	RUTGERS, THE STATE UNIVERSITY OF NEW JERSEY	195 LITTLE ALBANY ST	NEW BRUNSWICK	NJ	08903	MIDDLESEX	USA	Translation and Implementation Science Research for Heart, Lung, Blood Diseases, and Sleep Disorders	000	4	1/17/2022	SUPPLEMENT FOR EXPANSION	$2,500
2022	2021	RUTGERS, THE STATE UNIVERSITY OF NEW JERSEY	195 LITTLE ALBANY ST	NEW BRUNSWICK	NJ	08903	MIDDLESEX	USA	Translation and Implementation Science Research for Heart, Lung, Blood Diseases, and Sleep Disorders	001	4	8/31/2022	NON-COMPETING CONTINUATION	-$8,181
														Subtotal = -$5,681

Issue Date FY: 2021 ( Subtotal = $51,036 )
2021	2021	RUTGERS, THE STATE UNIVERSITY OF NEW JERSEY	195 LITTLE ALBANY ST	NEW BRUNSWICK	NJ	08903	MIDDLESEX	USA	Translation and Implementation Science Research for Heart, Lung, Blood Diseases, and Sleep Disorders	001	4	8/13/2021	NON-COMPETING CONTINUATION	$51,036
2021	2020	RUTGERS, THE STATE UNIVERSITY OF NEW JERSEY	195 LITTLE ALBANY ST	NEW BRUNSWICK	NJ	08903	MIDDLESEX	USA	Translation and Implementation Science Research for Heart, Lung, Blood Diseases, and Sleep Disorders	000	3	6/24/2021	NON-COMPETING CONTINUATION	$0
														Subtotal = $51,036

Issue Date FY: 2020 ( Subtotal = $50,520 )
2020	2020	RUTGERS, THE STATE UNIVERSITY OF NEW JERSEY	195 LITTLE ALBANY ST	NEW BRUNSWICK	NJ	08903	MIDDLESEX	USA	Translation and Implementation Science Research for Heart, Lung, Blood Diseases, and Sleep Disorders	000	3	8/10/2020	NON-COMPETING CONTINUATION	$50,520
														Subtotal = $50,520

Issue Date FY: 2019 ( Subtotal = $35,486 )
2019	2019	RUTGERS, THE STATE UNIVERSITY OF NEW JERSEY	195 LITTLE ALBANY ST	NEW BRUNSWICK	NJ	08903	MIDDLESEX	USA	Translation and Implementation Science Research for Heart, Lung, Blood Diseases, and Sleep Disorders	000	2	8/15/2019	NON-COMPETING CONTINUATION	$35,486
														Subtotal = $35,486

Issue Date FY: 2018 ( Subtotal = $34,994 )
2018	2018	RUTGERS, THE STATE UNIVERSITY OF NEW JERSEY	195 LITTLE ALBANY ST	NEW BRUNSWICK	NJ	08903	MIDDLESEX	USA	Translation and Implementation Science Research for Heart, Lung, Blood Diseases, and Sleep Disorders	000	1	8/21/2018	NEW	$34,994
														Subtotal = $34,994

Grand Total All Awards = $161,247

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The Feasibility of a Medical Student Mentoring Program to Improve Transition of Care Among Adolescents with Sickle Cell Disease

Award Number: F30HL142311

ORGANIZATION: NATIONAL HEART, LUNG, & BLOOD INSTITUTE

OPDIV: NIH

AWARD CLASS: DISCRETIONARY

AWARD ACTIVITY TYPE: FELLOWSHIP/SCHOLARSHIP/STUDENT LOANS

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