Tuesday, April 1, 2025
4/1/2025
Community Project Funding/Congressionally Directed Spending - Construction - The Rare Disease Translational Research Center (RDTC) is a pioneering project that aims to create a world-class research facility dedicated solely to the study of rare diseases. This project is about building a state-of-the-art infrastructure that will serve as a catalyst for scientific breakthroughs and innovations in the field of rare diseases. The facility, to be located in Bar Harbor, Maine, will house advanced laboratories equipped with the latest technologies and equipment. These laboratories will provide a conducive environment for scientists to conduct cutting-edge research, from basic science to translational studies, all aimed at understanding the underlying mechanisms of rare diseases and developing effective treatments. The research conducted here will contribute to the global body of knowledge on rare diseases, accelerating the pace of discovery and bringing us closer to finding cures. It will also foster collaborations among scientists, enhancing the exchange of ideas and facilitating the sharing of research findings. The project will incorporate sustainable design principles, with a focus on energy efficiency and environmental stewardship. The facility will be designed to foster creativity and collaboration, with open spaces, natural light, and a layout that encourages interaction among researchers. Construction is expected to begin in late 2024and will take approximately two years. We are committed to keeping our community informed of our progress and will make every effort to minimize disruption during the construction phase. The Rare Disease Translational Research Center (RDTC) is a testament to our commitment to advancing rare disease research. It is about creating a space where science thrives, and where every discovery brings us one step closer to making a difference in the lives of those affected by rare diseases. We are excited about the journey ahead and look forward to sharing more details as the project progresses. Thank you for your support as we embark on this transformative project. Together, we can change the future of rare disease research.
HHS’ Tracking Accountability in Government Grants System (TAGGS) website provides access to detailed descriptions of grants, loans, aggregated direct payments and other types of financial assistance awarded by the HHS Operating Divisions (OPDIVs) and the Office of the Secretary Staff Divisions (STAFFDIVs).