Friday, October 31, 2025 10/31/2025

Northern California Spinal Cord Injury Model System of Care

Award Number: 90SIMS0006
ORGANIZATION: NATIONAL INSTITUTE ON DISABILITY, INDEPENDENT LIVING, AND REHABILITATION RESEARCH
OPDIV: ACL
AWARD CLASS: DISCRETIONARY
AWARD ACTIVITY TYPE: OTHER
PERIOD OF PERFORMANCE START DATE: 09/01/2021
PERIOD OF PERFORMANCE END DATE: 08/31/2026

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Northern California Spinal Cord Injury Model System of Care - Based on input from individuals with spinal cord injury (SCI), family members, caregivers, community organizations, and rehabilitation professionals, the Northern California Spinal Cord Injury Model System of Care (NCSCIMS) proposal includes evidence-based rehabilitation research relevant to individuals with SCI. The NCSCIMS will continue promoting improved long-term outcomes for individuals with SCI by 1) conducting a site-specific research project (SSRP), 2) participating in the SCIMS database project by enrolling 80% of eligible patients and conducting follow up interviews on participants previously and prospectively enrolled at NCSCIMS, and 3) participating in a module research project (MRP). The NCSCIMS is part of a multidisciplinary system, providing rehabilitation services across the continuum of care. SCIMS Database Project: The NCSCIMS will continue the assessment of long-term outcomes of SCI by enrolling 56 participants per year into the longitudinal portion of the SCIMS database and continuing to collect follow-up assessments. NCSCIMS has been a part of the Model Systems program since its inception, was a funded SCIMS center 1974-1985 & 1990-2006, and has been a follow-up center from 2007 to present. NCSCIMS currently follows a diverse sample of over 870 participants up to 45 years post-injury. SSRP Background: In the chronic phase of injury, persons with SCI can develop a wide array of secondary complications including cardiometabolic disease (CMD), bowel and bladder dysfunction, spasticity, pain, and pressure injuries.1,2 In particular, cardiovascular disease (CVD) is a leading cause of death after the first year of injury and the mortality rate due to CVD is 228% higher than individuals without SCI.4 However, the risk of developing CMD among individuals with SCI is modifiable and may be mitigated by targeted nutrition intervention. Utilizing the USDA’s 2020-2025 Dietary Guideline for Americans, the Academy of Nutrition and Dietetics SCI Nutrition Practice Guidelines, and the Consortium for Spinal Cord Medicine Clinical Practice Guidelines, this study proposes to deliver individualized medical nutrition therapy to individuals with chronic SCI. A dietitian with SCI specialization will deliver treatments 1) videoconferencing sessions (bimonthly iPad FaceTime calls) and 2) between session support and monitoring (Ate App photo-journal and messaging). This approach provides an ecologically valid, individualized intervention that is consistent with standard clinical practice, while meeting the needs of individuals with SCI by providing accessible specialized care. SSRP Method: The SSRP will enroll 96 individuals to a randomized, waitlist control study with three primary outcome time points (baseline, 3-months post-baseline, and 6-months post-baseline). The immediate treatment group will receive bimonthly telenutrition (TN) counseling during the first 3 months followed by a 3-month follow-up period. Delayed treatment group will receive the intervention during months 4-6. Specific Aim 1: Prospectively examine the effect of TN on diet quality. Specific Aim 2: Prospectively examine the effect of TN on physiological risk components of CMD. Specific Aim 3: Prospectively examine the effect of TN on bowel and bladder function and subsequent changes in the incidence of autonomic dysreflexia and quality of life. Deliverable: Sharing Recipes for Healthy Eating. MRP: The NCSCIMS proposes a study of successful aging for individuals with SCI. Stakeholder Involvement: A diverse advisory board that includes individuals with SCI and SCI physician-scientists will ensure stakeholder feedback while a robust dissemination plan. including publications, presentations, our website, and the NIDLRR MSKTC will ensure access to results generated by NCSCIMS.


Issue Date FY	Funding FY	Legal Entity Name	Legal Entity Address	Legal Entity City	Legal Entity State	Legal Entity Zip Code	Legal Entity COUNTY	Legal Entity COUNTRY	Assistance Listing	Award Code	Budget Year	Action Date	Action Type	Action Amount

Issue Date FY: 2025 ( Subtotal = $468,689 )
2025	2025	COUNTY OF SANTA CLARA	2325 ENBORG LN	SAN JOSE	CA	95128	SANTA CLARA	USA	ACL National Institute on Disability, Independent Living, and Rehabilitation Research	00	5	5/27/2025	NON-COMPETING CONTINUATION	$468,689
2025	2024	COUNTY OF SANTA CLARA	2325 ENBORG LN	SAN JOSE	CA	95128	SANTA CLARA	USA	ACL National Institute on Disability, Independent Living, and Rehabilitation Research	00	5	5/27/2025	NON-COMPETING CONTINUATION	$0
2025	2023	COUNTY OF SANTA CLARA	2325 ENBORG LN	SAN JOSE	CA	95128	SANTA CLARA	USA	ACL National Institute on Disability, Independent Living, and Rehabilitation Research	00	5	5/27/2025	NON-COMPETING CONTINUATION	$0
2025	2022	COUNTY OF SANTA CLARA	2325 ENBORG LN	SAN JOSE	CA	95128	SANTA CLARA	USA	ACL National Institute on Disability, Independent Living, and Rehabilitation Research	00	5	5/27/2025	NON-COMPETING CONTINUATION	$0
2025	2021	COUNTY OF SANTA CLARA	2325 ENBORG LN	SAN JOSE	CA	95128	SANTA CLARA	USA	ACL National Institute on Disability, Independent Living, and Rehabilitation Research	00	5	5/27/2025	NON-COMPETING CONTINUATION	$0
														Subtotal = $468,689

Issue Date FY: 2024 ( Subtotal = $499,873 )
2024	2024	COUNTY OF SANTA CLARA	2325 ENBORG LN	SAN JOSE	CA	95128	SANTA CLARA	USA	ACL National Institute on Disability, Independent Living, and Rehabilitation Research	01	4	8/26/2024	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$29,596
2024	2024	COUNTY OF SANTA CLARA	2325 ENBORG LN	SAN JOSE	CA	95128	SANTA CLARA	USA	ACL National Institute on Disability, Independent Living, and Rehabilitation Research	00	4	7/17/2024	NON-COMPETING CONTINUATION	$470,277
2024	2023	COUNTY OF SANTA CLARA	2325 ENBORG LN	SAN JOSE	CA	95128	SANTA CLARA	USA	ACL National Institute on Disability, Independent Living, and Rehabilitation Research	01	4	8/26/2024	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2024	2023	COUNTY OF SANTA CLARA	2325 ENBORG LN	SAN JOSE	CA	95128	SANTA CLARA	USA	ACL National Institute on Disability, Independent Living, and Rehabilitation Research	00	4	7/17/2024	NON-COMPETING CONTINUATION	$0
2024	2022	COUNTY OF SANTA CLARA	2325 ENBORG LN	SAN JOSE	CA	95128	SANTA CLARA	USA	ACL National Institute on Disability, Independent Living, and Rehabilitation Research	00	4	7/17/2024	NON-COMPETING CONTINUATION	$0
2024	2022	COUNTY OF SANTA CLARA	2325 ENBORG LN	SAN JOSE	CA	95128	SANTA CLARA	USA	ACL National Institute on Disability, Independent Living, and Rehabilitation Research	01	4	8/26/2024	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2024	2021	COUNTY OF SANTA CLARA	2325 ENBORG LN	SAN JOSE	CA	95128	SANTA CLARA	USA	ACL National Institute on Disability, Independent Living, and Rehabilitation Research	00	4	7/17/2024	NON-COMPETING CONTINUATION	$0
2024	2021	COUNTY OF SANTA CLARA	2325 ENBORG LN	SAN JOSE	CA	95128	SANTA CLARA	USA	ACL National Institute on Disability, Independent Living, and Rehabilitation Research	01	4	8/26/2024	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
														Subtotal = $499,873

Issue Date FY: 2023 ( Subtotal = $499,216 )
2023	2023	COUNTY OF SANTA CLARA	2325 ENBORG LN	SAN JOSE	CA	95128	SANTA CLARA	USA	ACL National Institute on Disability, Independent Living, and Rehabilitation Research	01	3	8/29/2023	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$29,984
2023	2023	COUNTY OF SANTA CLARA	2325 ENBORG LN	SAN JOSE	CA	95128	SANTA CLARA	USA	ACL National Institute on Disability, Independent Living, and Rehabilitation Research	00	3	8/17/2023	NON-COMPETING CONTINUATION	$469,232
2023	2022	COUNTY OF SANTA CLARA	2325 ENBORG LN	SAN JOSE	CA	95128	SANTA CLARA	USA	ACL National Institute on Disability, Independent Living, and Rehabilitation Research	00	3	8/17/2023	NON-COMPETING CONTINUATION	$0
2023	2022	COUNTY OF SANTA CLARA	2325 ENBORG LN	SAN JOSE	CA	95128	SANTA CLARA	USA	ACL National Institute on Disability, Independent Living, and Rehabilitation Research	01	3	8/29/2023	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2023	2021	COUNTY OF SANTA CLARA	2325 ENBORG LN	SAN JOSE	CA	95128	SANTA CLARA	USA	ACL National Institute on Disability, Independent Living, and Rehabilitation Research	01	3	8/29/2023	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2023	2021	COUNTY OF SANTA CLARA	2325 ENBORG LN	SAN JOSE	CA	95128	SANTA CLARA	USA	ACL National Institute on Disability, Independent Living, and Rehabilitation Research	00	3	8/17/2023	NON-COMPETING CONTINUATION	$0
														Subtotal = $499,216

Issue Date FY: 2022 ( Subtotal = $495,479 )
2022	2022	SANTA CLARA, COUNTY OF	2325 Enborg Lane STE380	San Jose	CA	95128	SANTA CLARA	USA	ACL National Institute on Disability, Independent Living, and Rehabilitation Research	00	2	8/24/2022	NON-COMPETING CONTINUATION	$470,546
2022	2022	SANTA CLARA, COUNTY OF	2325 Enborg Ln STE 380	San Jose	CA	95128	SANTA CLARA	USA	ACL National Institute on Disability, Independent Living, and Rehabilitation Research	01	2	9/27/2022	SUPPLEMENT FOR EXPANSION	$24,933
2022	2021	SANTA CLARA, COUNTY OF	2325 Enborg Lane STE380	San Jose	CA	95128	SANTA CLARA	USA	ACL National Institute on Disability, Independent Living, and Rehabilitation Research	00	2	8/24/2022	NON-COMPETING CONTINUATION	$0
2022	2021	SANTA CLARA, COUNTY OF	2325 Enborg Ln STE 380	San Jose	CA	95128	SANTA CLARA	USA	ACL National Institute on Disability, Independent Living, and Rehabilitation Research	01	2	9/27/2022	SUPPLEMENT FOR EXPANSION	$0
														Subtotal = $495,479

Issue Date FY: 2021 ( Subtotal = $450,632 )
2021	2021	SANTA CLARA, COUNTY OF	2325 Enborg Lane STE380	San Jose	CA	95128	SANTA CLARA	USA	ACL National Institute on Disability, Independent Living, and Rehabilitation Research	00	1	8/24/2021	NEW	$450,632
														Subtotal = $450,632

Grand Total All Awards = $2,413,889

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Northern California Spinal Cord Injury Model System of Care

Award Number: 90SIMS0006

ORGANIZATION: NATIONAL INSTITUTE ON DISABILITY, INDEPENDENT LIVING, AND REHABILITATION RESEARCH

OPDIV: ACL

AWARD CLASS: DISCRETIONARY

AWARD ACTIVITY TYPE: OTHER

PERIOD OF PERFORMANCE START DATE: 09/01/2021

PERIOD OF PERFORMANCE END DATE: 08/31/2026

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