Goal: The Traumatic Brain Injury Model Systems (TBIMS) National Data and Statistical Center (NDSC) at Craig Hospital proposes to manage the TBIMS National Database (NDB) for another 5 years, increasing the rigor and efficiency of scientific efforts to longitudinally assess the experience of people with TBI.
Objectives: The NDSC will enhance collection of high quality, reliable data; ensure data security, validity, retrieval, and storage; provide expertise in advanced analytics; create a sustainable data preservation program; provide ready access to TBIMS data; provide training and technical assistance to stakeholders, and enhance TBIMS support infrastructure.
Approach: NDSC staff is organized into four functional areas: the technical area, which focuses on state-of-the-art data management technology; the data quality area, which focuses on upholding data quality and culturally competent research, as well as providing training and technical assistance; the statistical area, which focuses on training and consultation to improve the rigor of NDB longitudinal research; and the special projects/collaborative area, which focuses on conducting special projects as well as joint research with federal and non-federal partners to maximize NDB use. Target Population: TBIMS data collectors, researchers and NDB users.
Outcomes: NDSC success can be measured in improved data quality metrics, closing the racial/ethnic gap in NDB recruitment and retention, maintaining exceptional customer satisfaction in regular surveys, increased use of the NDB by TBIMS and outside researchers, increased number and methodological rigor of peer reviewed articles using the NDB, and successful completion of modules and collaborative studies using NDSC data management services.
Products: The NDSC will deliver a customizable data capture program that works on any device using any browser, data quality reports, data dashboards of TBIMS information, a certification process for Form II interviewing, advanced statistical training, a help desk function, and a public use version of the NDB that can be queried.