Thursday, March 13, 2025
3/13/2025
Parents Empowering Parents:National Research Center on Parents with Disabilities and their Families The Parents Empowering Parents: National Research Center for Parents with Disabilities and their Families (the PEP Center), directed by a National Advisory Board of parents living with disabilities and their family members, represents an active collaboration between the Lurie Institute on Disability Policy at Brandeis University and Dartmouth, the Great Lakes ADA Center, Rochester Institute of Technology, and the Universities of Michigan, Minnesota, and Massachusetts. In this five-year DRRP, we will address knowledge gaps regarding parents and their families through: (a) population-based research and analysis of national datasets to inform policy and practice; and (b) the systematic analysis of state legislation and child welfare policies to identify facilitators and barriers to systemic change. We will develop, adapt, test and scale-up interventions including: (a) a parent peer specialist model for parents with psychiatric disabilities; (b) a virtual peer support intervention for Deaf parents; (c) a parent-centered planning intervention for parents with intellectual, developmental and physical disabilities; and (d) a targeted, informed legal services model for parents with diverse disabilities. Guided by a state of the art knowledge translation model, we will work with experts in media and technology, and training and technical assistance to generate products with parents, for parents and their family members, practitioners, policy makers, and advocates. Resources, tools, and training and intervention materials will be available through the accessible online PEP Portal and its sister site, Padres Apoderando a Padres. We will build on the Disabled Parenting Project web site, where parents and family members currently interact, share knowledge, and empower each other. Parents with disabilities are partners in all PEP Center activities.
HHS’ Tracking Accountability in Government Grants System (TAGGS) website provides access to detailed descriptions of grants, loans, aggregated direct payments and other types of financial assistance awarded by the HHS Operating Divisions (OPDIVs) and the Office of the Secretary Staff Divisions (STAFFDIVs).