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Expanding Access to Assistive Walking Devices: Managing Symptoms for Child and Adolescent CMT Patients with Exoskeletal Boots

Award Number: 90BISA0093
ORGANIZATION: NATIONAL INSTITUTE ON DISABILITY, INDEPENDENT LIVING, AND REHABILITATION RESEARCH
OPDIV: ACL
AWARD CLASS: DISCRETIONARY
AWARD ACTIVITY TYPE: OTHER
PERIOD OF PERFORMANCE START DATE: 06/01/2025
PERIOD OF PERFORMANCE END DATE: 01/15/2026

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Expanding Access to Assistive Walking Devices: Managing Symptoms for Child and Adolescent CMT Patients with Exoskeletal Boots - Results Group LLC together with the Charcot-Marie-Tooth Association (CMTA) and CMT Centers of Excellence at Mass General Hospital, St. Jude Hospital and Children’s Hospital of Colorado will conduct a 6-month project to re-imagine assistive technology to address a critical gap in the start of treatment of youth with CMT. The goal is to decelerate CMT progression by creating a new alternative to ankle/foot bracing which can be started years earlier than is possible with today’s ankle foot orthoses (AFOs) which have multiple issues of discomfort, bulkiness, high costs and stigma. Current clinical care guidelines acknowledge the difficulty of wearing AFOs and do not prescribe them until after significant disease progression, leaving 10+ years of missed opportunity for earlier treatment. Our objectives are: 1) to design a new exoskeleton bracing device hidden within a boot with greater drop-foot resistance 2) to conduct benchtop testing and compare boot performance to today’s best AFOs 3) to design a Phase II clinical study that overcomes barriers to participation of underserved populations. Products generated include: 1) a pendulum testing rig to evaluate trip hazards from drop foot, 2) three exoskeleton shoe prototypes, 3) benchtop test evaluation reports, and 4) a Phase II study plan. Implications include the ability to start bracing years earlier and reduce non-adherence, to: 1) Sustain daily activity levels in educational, social and family activities, 2) Reduce likelihood of developing compensatory gait and the accelerated loss of ankle/foot strength, 3) Support normal musculoskeletal development to better prepare adolescents for adulthood, and 4) Reduce the stigma of bracing to improve psycho-social outlook


Issue Date FY	Funding FY	Legal Entity Name	Legal Entity Address	Legal Entity City	Legal Entity State	Legal Entity Zip Code	Legal Entity COUNTY	Legal Entity COUNTRY	Assistance Listing	Award Code	Budget Year	Action Date	Action Type	Action Amount

Issue Date FY: 2026 ( Subtotal = $0 )
2026	2025	RESULTS GROUP, LLC	90 NATIONAL DR	GLASTONBURY	CT	06033	CAPITOL	USA	ACL National Institute on Disability, Independent Living, and Rehabilitation Research	02	1	1/7/2026	OTHER REVISION	$0
2026	2025	RESULTS GROUP, LLC	90 NATIONAL DR	GLASTONBURY	CT	06033	CAPITOL	USA	ACL National Institute on Disability, Independent Living, and Rehabilitation Research	01	1	12/28/2025	EXTENSION WITH OR WITHOUT FUNDS	$0
														Subtotal = $0

Issue Date FY: 2025 ( Subtotal = $100,000 )
2025	2025	RESULTS GROUP, LLC	90 NATIONAL DR	GLASTONBURY	CT	06033	CAPITOL	USA	ACL National Institute on Disability, Independent Living, and Rehabilitation Research	00	1	5/5/2025	NEW	$100,000
														Subtotal = $100,000

Grand Total All Awards = $100,000

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Expanding Access to Assistive Walking Devices: Managing Symptoms for Child and Adolescent CMT Patients with Exoskeletal Boots

Award Number: 90BISA0093

ORGANIZATION: NATIONAL INSTITUTE ON DISABILITY, INDEPENDENT LIVING, AND REHABILITATION RESEARCH

OPDIV: ACL

AWARD CLASS: DISCRETIONARY

AWARD ACTIVITY TYPE: OTHER

PERIOD OF PERFORMANCE START DATE: 06/01/2025

PERIOD OF PERFORMANCE END DATE: 01/15/2026

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