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Connecticut will increase access for cell and gene therapy for sickle cell disease by raising awareness and providing education to the sickle cell community, through enhanced care coordination.

Award Number: 2P2CMS332030
ORGANIZATION: HEALTH CARE FINANCING ADMINISTRATION, OFFICE OF ACQUISITION AND GRANTS
OPDIV: CMS
AWARD CLASS: DISCRETIONARY
AWARD ACTIVITY TYPE: OTHER
PERIOD OF PERFORMANCE START DATE: 08/01/2025
PERIOD OF PERFORMANCE END DATE: 12/31/2035

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Connecticut will increase access for cell and gene therapy for sickle cell disease by raising awareness and providing education to the sickle cell community, through enhanced care coordination. - Connecticut is implementing a comprehensive model to enhance access to cell and gene therapy for Medicaid members with sickle cell disease (SCD). Through a partnership with Community Health Network of Connecticut (CHNCT), funding will be provided to four clinical sites (Yale Adult SCD clinic, Yale Pediatric SCD Clinic, University of Connecticut Health Center and Connecticut Children’s Medical Center) to support care management and address health-related social needs for patients undergoing cell and gene therapy. A CBO with expertise in sickle cell disease will assist with providing education to patients and providers and support efforts to raise awareness about these therapies. Key activities within the $ 7,404,199 implementation budget include: • Awareness, Education, and Access: Develop educational materials and raise awareness about cell and gene therapy (CGT) through collaborations with a CBO and clinical sites. This includes organizing peer support from individuals who have undergone bone marrow transplantation or gene therapy. • Health-Related Social Needs (HRSN): CHNCT will oversee care coordinators to address beneficiaries’ HRSNs, such as childcare, transportation, housing and nutrition support, by maximizing Medicaid benefits and allocating grant funds for services not covered under Medicaid. • Care Coordination: Embedded care managers at each clinical site will provide on-site coordination, case management, and patient navigation services. CHNCT will support these managers and assist in resolving system-related issues and navigating Medicaid benefits. In addition, $1,294,000 in Milestone funding will support research efforts at the same four clinical sites and a CBO with expertise in SCD. This research project will enroll patients and stakeholders in Connecticut to participate in qualitative interviews and focus groups. The information gathered will be analyzed to identify the current state of care and barriers to access to care. Potential solutions will then be identified, including solutions unique to the conditions in Connecticut. The next phase of the project will determine the impact of interventions implemented.


Issue Date FY	Funding FY	Legal Entity Name	Legal Entity Address	Legal Entity City	Legal Entity State	Legal Entity Zip Code	Legal Entity COUNTY	Legal Entity COUNTRY	Assistance Listing	Award Code	Budget Year	Action Date	Action Type	Action Amount

Issue Date FY: 2026 ( Subtotal = $748,528 )
2026	2026	DEPARTMENT OF SOCIAL SERVICES CONNECTICUT	55 FARMINGTON AVE	HARTFORD	CT	06105	CAPITOL	USA	Cell and Gene Therapy (CGT) Access Model	02	1	1/28/2026	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2026	2026	DEPARTMENT OF SOCIAL SERVICES CONNECTICUT	55 FARMINGTON AVE	HARTFORD	CT	06105	CAPITOL	USA	Cell and Gene Therapy (CGT) Access Model	01	1	11/20/2025	SUPPLEMENT FOR EXPANSION	$748,528
														Subtotal = $748,528

Issue Date FY: 2025 ( Subtotal = $671,090 )
2025	2025	DEPARTMENT OF SOCIAL SERVICES CONNECTICUT	55 FARMINGTON AVE	HARTFORD	CT	06105	CAPITOL	USA	Cell and Gene Therapy (CGT) Access Model	00	1	8/1/2025	NEW	$671,090
														Subtotal = $671,090

Grand Total All Awards = $1,419,618

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Connecticut will increase access for cell and gene therapy for sickle cell disease by raising awareness and providing education to the sickle cell community, through enhanced care coordination.

Award Number: 2P2CMS332030

ORGANIZATION: HEALTH CARE FINANCING ADMINISTRATION, OFFICE OF ACQUISITION AND GRANTS

OPDIV: CMS

AWARD CLASS: DISCRETIONARY

AWARD ACTIVITY TYPE: OTHER

PERIOD OF PERFORMANCE START DATE: 08/01/2025

PERIOD OF PERFORMANCE END DATE: 12/31/2035

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