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Birth Defects Surveillance in Texas: Methodological Enhancement and Impactful Data Utilization

Award Number: NU50DD004942
ORGANIZATION: NATIONAL CENTER ON BIRTH DEFECTS AND DEVELOPMENTAL DISABILITIES (NCBDDD)
OPDIV: CDC
AWARD CLASS: DISCRETIONARY
AWARD ACTIVITY TYPE: HEALTH SERVICES
PERIOD OF PERFORMANCE START DATE: 02/01/2016
PERIOD OF PERFORMANCE END DATE: 01/31/2022

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Birth Defects Surveillance in Texas: Methodological Enhancement and Impactful Data Utilization - BIRTH DEFECTS SURVEILLANCE IN TEXAS:METHODOLOGICAL ENHANCEMENT AND IMPACTFUL DATA UTILIZATIONPROJECT ABSTRACTThe Texas Birth Defects Registry is one of the largest active, population-based birth defects surveillance systems in the world, ascertaining all major structural birth defects and chromosomal disorders. The Birth Defects Epidemiology and Surveillance Branch, home of the Registry at the Texas Department of State Health Services (DSHS), started in 1994 and by 2013 had registered 260,000 cases. The publication history for this program and its collaborators is extensive and varied, with 300 peer-reviewed articles on the epidemiology and genetics of birth defects, nearly all of which include data and co-investigators from this Registry. This grant, if awarded to Texas, will help greatly to move the Registry forward in several areas. First, the Epidemiology and Surveillance Branch will evaluate possible under-ascertainment of cases of major birth defects in the Registry using important new data sources: (1) statewide patient-level data from hospital inpatient, outpatient, and emergency visits; (2) Texas Medicaid data, housed at a related agency (HHSC) and covering 55% of all Texas children: and (3) a database of passively reported chromosomal/genetic laboratory diagnoses for mothers and infants. Working alongside DSHS/HHSC staff and external project collaborators, a high-level research specialist funded by this grant will evaluate and publish peer-reviewed articles on case ascertainment and completeness using these new data in the Registry. Results will ultimately result in more complete ascertainment.A second area of concentration is the reach of program information to additional external entities, including the general public and affected families. The program appears to perform well in communicating with Title V and collaborators about Registry data and research findings; however, we would like to improve our website and increase interactio n with the professional and lay public and better understand the roles of professional groups, support groups, and multidisciplinary clinics. A new CDC-funded program specialist will work with Registry, DSHS, and HHSC staff and university collaborators to amplify the program?s reach and ensure messaging about birth defect risk factors in Title V program informational materials. In addition, two registry-based family outreach initiatives will be implemented and evaluated: one an informational effort on available services and the other on preventing certain birth defects. Through interviews, information will also be received on the use of multi-disciplinary clinics. A final area of concentration is with critical congenital heart defects (CCHDs) targeted for pulse oximetry screening at birth. We will work with partners/collaborators to compare the Registry with other datasets for overlap of cases; evaluate and increase the ascertainment of CCHDs; provide detailed annual neonatal and infant case-fatality data for the 12 CCHD conditions; and utilize statewide Registry and hospital data to examine outcomes of children with CCHDs during and after infancy.


Issue Date FY	Funding FY	Legal Entity Name	Legal Entity Address	Legal Entity City	Legal Entity State	Legal Entity Zip Code	Legal Entity COUNTY	Legal Entity COUNTRY	Assistance Listing	Award Code	Budget Year	Action Date	Action Type	Action Amount

Issue Date FY: 2022 ( Subtotal = -$26,954 )
2022	2020	State Health Services, Texas Department of	1100 W 49th St	Austin	TX	78756	TRAVIS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	07	4	5/19/2022	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	-$26,954
2022	2019	State Health Services, Texas Department of	1100 W 49th St	Austin	TX	78756	TRAVIS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	07	4	5/19/2022	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2022	2018	State Health Services, Texas Department of	1100 W 49th St	Austin	TX	78756	TRAVIS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	07	4	5/19/2022	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2022	2017	State Health Services, Texas Department of	1100 W 49th St	Austin	TX	78756	TRAVIS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	07	4	5/19/2022	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2022	2016	State Health Services, Texas Department of	1100 W 49th St	Austin	TX	78756	TRAVIS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	07	4	5/19/2022	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
														Subtotal = -$26,954

Issue Date FY: 2021 ( Subtotal = $0 )
2021	2020	STATE HEALTH SERVICES, TEXAS DEPARTMENT OF	1100 W 49TH ST	AUSTIN	TX	78756	TRAVIS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	06	4	7/6/2021	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2021	2020	State Health Services, Texas Department of	1100 W 49th St	Austin	TX	78756	TRAVIS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	04	4	1/8/2021	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2021	2020	STATE HEALTH SERVICES, TEXAS DEPARTMENT OF	1100 W 49TH ST	AUSTIN	TX	78756	TRAVIS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	05	4	6/25/2021	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
														Subtotal = $0

Issue Date FY: 2020 ( Subtotal = $195,000 )
2020	2020	State Health Services, Texas Department Of	1100 W 49th St	Austin	TX	78756	TRAVIS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	02	4	1/23/2020	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$195,000
2020	2020	State Health Services, Texas Department Of	1100 W 49th St	Austin	TX	78756	TRAVIS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	03	4	3/26/2020	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
														Subtotal = $195,000

Issue Date FY: 2019 ( Subtotal = $210,000 )
2019	2019	State Health Services, Texas Department Of	1100 W 49th St	Austin	TX	78756	TRAVIS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	01	4	3/7/2019	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2019	2019	State Health Services, Texas Department Of	1100 W 49th St	Austin	TX	78756	TRAVIS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	4	1/14/2019	NON-COMPETING CONTINUATION	$210,000
														Subtotal = $210,000

Issue Date FY: 2018 ( Subtotal = $200,000 )
2018	2018	State Health Services, Texas Department Of	1100 W 49th St	Austin	TX	78756	TRAVIS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	3	12/29/2017	NON-COMPETING CONTINUATION	$200,000
2018	2018	State Health Services, Texas Department Of	1100 W 49th St	Austin	TX	78756	TRAVIS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	01	3	3/15/2018	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
														Subtotal = $200,000

Issue Date FY: 2017 ( Subtotal = $200,000 )
2017	2017	STATE HEALTH SERVICES, TEXAS DEPARTMENT OF	1100 W 49th St	AUSTIN	TX	78756	TRAVIS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	2	12/23/2016	NON-COMPETING CONTINUATION	$200,000
														Subtotal = $200,000

Issue Date FY: 2016 ( Subtotal = $210,000 )
2016	2016	TX DEPT OF STATE HEALTH SERVICES	1100 West 49th Street	AUSTIN	TX	78756	TRAVIS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	1	2/8/2016	NEW	$210,000
														Subtotal = $210,000

Grand Total All Awards = $988,046

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Birth Defects Surveillance in Texas: Methodological Enhancement and Impactful Data Utilization

Award Number: NU50DD004942

ORGANIZATION: NATIONAL CENTER ON BIRTH DEFECTS AND DEVELOPMENTAL DISABILITIES (NCBDDD)

OPDIV: CDC

AWARD CLASS: DISCRETIONARY

AWARD ACTIVITY TYPE: HEALTH SERVICES

PERIOD OF PERFORMANCE START DATE: 02/01/2016

PERIOD OF PERFORMANCE END DATE: 01/31/2022

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