Goals: Individuals with intellectual and developmental disabilities (IDD) experience unique challenges across behavioral, cognitive, communication, and functional domains during adolescence and adulthood. These challenges are amplified by a sharp decline in service availability, which widens skill gaps between adolescents and adults with IDD and their typically-developing peers. Training parents to implement behaviorally-based interventions (BBI) can build capacity within families to meet the service needs of their adolescent and adult children with IDD. Tiered, or scaffolded, training models and training via telehealth are effective methods for training parents to implement BBIs and can lead to improvements in adolescent and adult behavior. The purpose of PATH (training Parents of Adolescents and adults with disabilities using TeleHealth) is to develop a scaffolded parent training program delivered via telehealth to improve (a) parent implementation of BBIs and (b) outcomes for adolescents and adults with IDD across developmental domains.
Objectives: During the project’s first two years, investigators will develop a scaffolded parent training program using an iterative mixed-methods approach, including focus groups, stakeholder feedback, and expert feedback. In year three, investigators will test the efficacy of the PATH program using single- case experimental design and will evaluate the acceptability of the PATH program using a mixed- method approach.
Outcomes: PATH seeks to improve community living and participation for adolescents and adults with IDD. Anticipated outcomes for years one and two include (a) development of a scaffolded telehealth parent training program and (b) development of the PATH program website. Anticipated outcomes for year three include (a) increased parent implementation fidelity of BBIs, (b) improved adolescent and adult behavior across developmental domains, and (c) comprehensive social validity analysis of the PATH program.