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Developing Best Practices of Community Engagement for Genomics and Biobanking in Africa - CEBioGEN

Award Number: U54HG010275
ORGANIZATION: NATIONAL HUMAN GENOME RESEARCH INSTITUTE
OPDIV: NIH
AWARD CLASS: COOPERATIVE AGREEMENT
AWARD ACTIVITY TYPE: SCIENTIFIC/HEALTH RESEARCH (INCLUDES SURVEYS)

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The Community Engagement in Biobanking and Genomics (CEBioGen) collaborative centre aims to build a systematic evidence base for effective community engagement for genomics and biobanking in Africa from the recruitment stage to feedback of findings. This will involve three interrelated research projects across six African Countries; Ghana, Kenya, The Gambia, Nigeria, Tanzania and South Africa. Project 1 will aim at exploring innovative ways of returning aggregate genomic research results to research participants and communities in rural and urban settings in Ghana, Kenya and South Africa using the H3Africa AWI-Gen project infrastructure and research program, a population-based study on cardiometabolic diseases, as a case study. In Project 2, we will conduct a case study aimed at exploring attitudes and preferences of research participants and their families in a genomic research study on kidney disease on feeding back individual genetic research findings, to examine the role of families in returning individual genetic findings and to explore stakeholders’ views on methods for feeding back individual genetic findings in Ghana, Nigeria and Tanzania. Project 3 will focus on investigating community perspectives on the model of consent that can support genomic studies on the study of multiple genomes of the human host and pathogen and vector host and pathogen using the H3Africa PAMGen project, a malaria genetic epidemiology study, as a case study. These studies will be supported by an ELSI core and training programmes which will aim at developing the capacity of a cadre of social scientists and CE practioners.


Issue Date FY	Funding FY	Legal Entity Name	Legal Entity Address	Legal Entity City	Legal Entity State	Legal Entity Zip Code	Legal Entity COUNTY	Legal Entity COUNTRY	Assistance Listing	Award Code	Budget Year	Action Date	Action Type	Action Amount

Issue Date FY: 2024 ( Subtotal = $0 )
2024	2021	NOGUCHI MEMORIAL INSTITUTE FOR MEDICAL RESEARCH	NOGUCHI ROAD UNIVERSITY OF GHANA	LEGON ACCRA	MASSACHUSETTS			GHA	Trans-NIH Research Support	000	4	1/3/2024	NON-COMPETING CONTINUATION	$0
														Subtotal = $0

Issue Date FY: 2022 ( Subtotal = $0 )
2022	2021	NOGUCHI MEMORIAL INSTITUTE FOR MEDICAL RESEARCH	NOGUCHI ROAD UNIVERSITY OF GHANA	LEGON				GHA	Trans-NIH Research Support	000	4	12/13/2021	NON-COMPETING CONTINUATION	$0
														Subtotal = $0

Issue Date FY: 2021 ( Subtotal = $415,001 )
2021	2021	NOGUCHI MEMORIAL INSTITUTE FOR MEDICAL RESEARCH	NOGUCHI ROAD P O BOX LG 581	LEGON				GHA	Trans-NIH Research Support	000	4	7/30/2021	NON-COMPETING CONTINUATION	$415,001
														Subtotal = $415,001

Issue Date FY: 2020 ( Subtotal = $421,174 )
2020	2020	NOGUCHI MEMORIAL INSTITUTE FOR MEDICAL RESEARCH	NOGUCHI ROAD P O BOX LG 581	LEGON				GHA	Trans-NIH Research Support	001	3	7/9/2020	NON-COMPETING CONTINUATION	$421,174
2020	2019	NOGUCHI MEMORIAL INSTITUTE FOR MEDICAL RESEARCH	NOGUCHI ROAD P O BOX LG 581	LEGON				GHA	Human Genome Research	000	2	1/29/2020	NON-COMPETING CONTINUATION	$0
														Subtotal = $421,174

Issue Date FY: 2019 ( Subtotal = $420,215 )
2019	2019	NOGUCHI MEMORIAL INSTITUTE FOR MEDICAL RESEARCH	NOGUCHI ROAD P O BOX LG 581	LEGON				GHA	Human Genome Research	002	2	6/28/2019	NON-COMPETING CONTINUATION	$420,215
2019	2018	NOGUCHI MEMORIAL INSTITUTE FOR MEDICAL RESEARCH	NOGUCHI ROAD P O BOX LG 581	LEGON				GHA	Human Genome Research	000	1	12/7/2018	NEW	$0
2019	2018	NOGUCHI MEMORIAL INSTITUTE FOR MEDICAL RESEARCH	NOGUCHI ROAD P O BOX LG 581	LEGON				GHA	Human Genome Research	001	1	4/1/2019	NEW	$0
														Subtotal = $420,215

Issue Date FY: 2018 ( Subtotal = $439,115 )
2018	2018	NOGUCHI MEMORIAL INSTITUTE FOR MEDICAL RESEARCH	NOGUCHI ROAD P O BOX LG 581	LEGON				GHA	Human Genome Research	000	1	9/24/2018	NEW	$439,115
														Subtotal = $439,115

Grand Total All Awards = $1,695,505

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Developing Best Practices of Community Engagement for Genomics and Biobanking in Africa - CEBioGEN

Award Number: U54HG010275

ORGANIZATION: NATIONAL HUMAN GENOME RESEARCH INSTITUTE

OPDIV: NIH

AWARD CLASS: COOPERATIVE AGREEMENT

AWARD ACTIVITY TYPE: SCIENTIFIC/HEALTH RESEARCH (INCLUDES SURVEYS)

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