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California Sickle Cell Data Collection Program - Surveillance to Inform All Stakeholders

Award Number: NU58DD000016
ORGANIZATION: NATIONAL CENTER ON BIRTH DEFECTS AND DEVELOPMENTAL DISABILITIES (NCBDDD)
OPDIV: CDC
AWARD CLASS: DISCRETIONARY
AWARD ACTIVITY TYPE: HEALTH SERVICES

Group Awards By Issue Date FY or Funding FY:

View Award Abstract

The Tracking California team has been responsible for sickle cell disease (SCD) surveillance in the state since 2010, using linked administrative data from state agencies, Medicaid, and clinical partners around the state. The partnership between the Centers for Disease Control and Prevention (CDC), this program in California and a similar one in Georgia has produced peer-reviewed publications, fact sheets, training and informational webinars, conference presentations, policy and legislation support, and contributions to numerous grant proposals in each of the states. In short, a variety of data and information gaps that previously existed have been filled, and the data have informed decision-making that has led to improvements in care. In each of the states, numerous collaborations across state agencies, data stewards, researchers, CBOs, public health partners, and policy makers have been established. Our work in California has supported new grants, state legislation and funding, and federal reports. However, much remains to be accomplished to inform stakeholders and improve the lives of those with SCD using the program’s surveillance data. The proposed program continues that work in California for the project period while leveraging other resources such as new data sources, collaborations, and analytic, dissemination, and health education capacity (Core funding). We will continue to provide data to CDC for annual reports and multi-state analyses and publication and continue to lead and co-author at least one publication per year with our data. The frequent requests for catchment area or facility utilization data to support programs or community based efforts to improve access to care will continue to be fulfilled quickly. We will also continue to collaborate and provide technical assistance where helpful to states new to SCD surveillance. With Optional funding, we propose to increase analytic and dissemination capacity further; Tracking California will lead and co-author a minimum of three analyses and publications per program year, conduct an in-depth evaluation of information gaps among stakeholders and the best ways to address them, and collaborate with community based organizations to respond to the findings of the evaluation and improve health education and outreach activities for SCD throughout the state. Outcomes of this three-year program will be increased standardization of methods among states conducting SCD surveillance, increased understanding and awareness of the epidemiology (incidence, prevalence, demographics) of those with SCD among all stakeholders in California and other participating states, increased understanding of healthcare utilization patterns for all those with SCD, not just those in clinical cohorts, and improved availability of aggregate level data and information for decision making for policy and healthcare practice.


Issue Date FY	Funding FY	Legal Entity Name	Legal Entity Address	Legal Entity City	Legal Entity State	Legal Entity Zip Code	Legal Entity COUNTY	Legal Entity COUNTRY	Assistance Listing	Award Code	Budget Year	Action Date	Action Type	Action Amount

Issue Date FY: 2024 ( Subtotal = -$343 )
2024	2022	PUBLIC HEALTH INSTITUTE	555 12TH ST STE 600	OAKLAND	CA	94607	ALAMEDA	USA	Blood Disorder Program: Prevention, Surveillance, and Research	06	3	2/6/2024	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	-$173
2024	2021	PUBLIC HEALTH INSTITUTE	555 12TH ST STE 600	OAKLAND	CA	94607	ALAMEDA	USA	Blood Disorder Program: Prevention, Surveillance, and Research	06	3	2/6/2024	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	-$170
2024	2020	PUBLIC HEALTH INSTITUTE	555 12TH ST STE 600	OAKLAND	CA	94607	ALAMEDA	USA	Blood Disorder Program: Prevention, Surveillance, and Research	06	3	2/6/2024	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
														Subtotal = -$343

Issue Date FY: 2023 ( Subtotal = $0 )
2023	2022	PUBLIC HEALTH INSTITUTE	555 12TH ST STE 600	OAKLAND	CA	94607	ALAMEDA	USA	Blood Disorder Program: Prevention, Surveillance, and Research	05	3	3/13/2023	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2023	2022	PUBLIC HEALTH INSTITUTE	555 12TH ST STE 600	OAKLAND	CA	94607	ALAMEDA	USA	Blood Disorder Program: Prevention, Surveillance, and Research	04	3	3/8/2023	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2023	2022	PUBLIC HEALTH INSTITUTE	555 12TH ST STE 600	OAKLAND	CA	94607	ALAMEDA	USA	Blood Disorder Program: Prevention, Surveillance, and Research	03	3	12/12/2022	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2023	2022	PUBLIC HEALTH INSTITUTE	555 12TH ST STE 600	OAKLAND	CA	94607	ALAMEDA	USA	Blood Disorder Program: Prevention, Surveillance, and Research	02	3	10/6/2022	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2023	2021	PUBLIC HEALTH INSTITUTE	555 12TH ST STE 600	OAKLAND	CA	94607	ALAMEDA	USA	Blood Disorder Program: Prevention, Surveillance, and Research	03	3	12/12/2022	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2023	2021	PUBLIC HEALTH INSTITUTE	555 12TH ST STE 600	OAKLAND	CA	94607	ALAMEDA	USA	Blood Disorder Program: Prevention, Surveillance, and Research	02	3	10/6/2022	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2023	2021	PUBLIC HEALTH INSTITUTE	555 12TH ST STE 600	OAKLAND	CA	94607	ALAMEDA	USA	Blood Disorder Program: Prevention, Surveillance, and Research	04	3	3/8/2023	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2023	2021	PUBLIC HEALTH INSTITUTE	555 12TH ST STE 600	OAKLAND	CA	94607	ALAMEDA	USA	Blood Disorder Program: Prevention, Surveillance, and Research	05	3	3/13/2023	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2023	2020	PUBLIC HEALTH INSTITUTE	555 12TH ST STE 600	OAKLAND	CA	94607	ALAMEDA	USA	Blood Disorder Program: Prevention, Surveillance, and Research	02	3	10/6/2022	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2023	2020	PUBLIC HEALTH INSTITUTE	555 12TH ST STE 600	OAKLAND	CA	94607	ALAMEDA	USA	Blood Disorder Program: Prevention, Surveillance, and Research	03	3	12/12/2022	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2023	2020	PUBLIC HEALTH INSTITUTE	555 12TH ST STE 600	OAKLAND	CA	94607	ALAMEDA	USA	Blood Disorder Program: Prevention, Surveillance, and Research	04	3	3/8/2023	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2023	2020	PUBLIC HEALTH INSTITUTE	555 12TH ST STE 600	OAKLAND	CA	94607	ALAMEDA	USA	Blood Disorder Program: Prevention, Surveillance, and Research	05	3	3/13/2023	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
														Subtotal = $0

Issue Date FY: 2022 ( Subtotal = $497,426 )
2022	2022	PUBLIC HEALTH INSTITUTE	555 12TH ST STE 600	OAKLAND	CA	94607	ALAMEDA	USA	Blood Disorder Program: Prevention, Surveillance, and Research	01	3	9/16/2022	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$82,975
2022	2022	PUBLIC HEALTH INSTITUTE	555 12TH ST STE 600	OAKLAND	CA	94607	ALAMEDA	USA	Blood Disorder Program: Prevention, Surveillance, and Research	00	3	8/25/2022	NON-COMPETING CONTINUATION	$414,451
2022	2021	PUBLIC HEALTH INSTITUTE	555 12TH ST STE 600	OAKLAND	CA	94607	ALAMEDA	USA	Blood Disorder Program: Prevention, Surveillance, and Research	00	3	8/25/2022	NON-COMPETING CONTINUATION	$0
2022	2021	PUBLIC HEALTH INSTITUTE	555 12TH ST STE 600	OAKLAND	CA	94607	ALAMEDA	USA	Blood Disorder Program: Prevention, Surveillance, and Research	01	3	9/16/2022	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2022	2021	Public Health Institute	555 12th St Ste 290	Oakland	CA	94607	ALAMEDA	USA	Blood Disorder Program: Prevention, Surveillance, and Research	02	2	10/12/2021	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2022	2021	Public Health Institute	555 12th St Ste 290	Oakland	CA	94607	ALAMEDA	USA	Blood Disorder Program: Prevention, Surveillance, and Research	03	2	11/24/2021	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2022	2020	PUBLIC HEALTH INSTITUTE	555 12TH ST STE 600	OAKLAND	CA	94607	ALAMEDA	USA	Blood Disorder Program: Prevention, Surveillance, and Research	01	3	9/16/2022	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2022	2020	PUBLIC HEALTH INSTITUTE	555 12TH ST STE 600	OAKLAND	CA	94607	ALAMEDA	USA	Blood Disorder Program: Prevention, Surveillance, and Research	00	3	8/25/2022	NON-COMPETING CONTINUATION	$0
2022	2020	Public Health Institute	555 12th St Ste 290	Oakland	CA	94607	ALAMEDA	USA	Blood Disorder Program: Prevention, Surveillance, and Research	03	2	11/24/2021	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2022	2020	Public Health Institute	555 12th St Ste 290	Oakland	CA	94607	ALAMEDA	USA	Blood Disorder Program: Prevention, Surveillance, and Research	02	2	10/12/2021	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
														Subtotal = $497,426

Issue Date FY: 2021 ( Subtotal = $652,790 )
2021	2021	PUBLIC HEALTH INSTITUTE	555 12th St Ste 1050	Oakland	CA	94607	ALAMEDA	USA	Blood Disorder Program: Prevention, Surveillance, and Research	02	1	5/3/2021	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$50,000
2021	2021	Public Health Institute	555 12th St Ste 1050	Oakland	CA	94607	ALAMEDA	USA	Blood Disorder Program: Prevention, Surveillance, and Research	01	2	9/21/2021	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$338,450
2021	2021	PUBLIC HEALTH INSTITUTE	555 12th St Ste 1050	Oakland	CA	94607	ALAMEDA	USA	Blood Disorder Program: Prevention, Surveillance, and Research	00	2	8/20/2021	NON-COMPETING CONTINUATION	$264,340
2021	2020	PUBLIC HEALTH INSTITUTE	555 12th St Ste 1050	Oakland	CA	94607	ALAMEDA	USA	Blood Disorder Program: Prevention, Surveillance, and Research	00	2	8/20/2021	NON-COMPETING CONTINUATION	$0
2021	2020	PUBLIC HEALTH INSTITUTE	555 12th St Ste 1050	Oakland	CA	94607	ALAMEDA	USA	Blood Disorder Program: Prevention, Surveillance, and Research	02	1	5/3/2021	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2021	2020	Public Health Institute	555 12th St Ste 1050	Oakland	CA	94607	ALAMEDA	USA	Blood Disorder Program: Prevention, Surveillance, and Research	01	2	9/21/2021	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2021	2020	PUBLIC HEALTH INSTITUTE	555 12TH ST STE 1050	OAKLAND	CA	94607	ALAMEDA	USA	Blood Disorder Program: Prevention, Surveillance, and Research	01	1	1/19/2021	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
														Subtotal = $652,790

Issue Date FY: 2020 ( Subtotal = $366,750 )
2020	2020	PUBLIC HEALTH INSTITUTE	555 12th St Ste 1050	Oakland	CA	94607	ALAMEDA	USA	Blood Disorder Program: Prevention, Surveillance, and Research	00	1	9/5/2020	NEW	$366,750
														Subtotal = $366,750

Grand Total All Awards = $1,516,623

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California Sickle Cell Data Collection Program - Surveillance to Inform All Stakeholders

Award Number: NU58DD000016

ORGANIZATION: NATIONAL CENTER ON BIRTH DEFECTS AND DEVELOPMENTAL DISABILITIES (NCBDDD)

OPDIV: CDC

AWARD CLASS: DISCRETIONARY

AWARD ACTIVITY TYPE: HEALTH SERVICES

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