The Louisiana Department of Health (LDH), Office of Public Health (OPH), Bureau of Family Health (BFH) surveils infant, child and maternal mortality through Fetal Infant Mortality Review (FIMR), Child Death Review (CDR), and Pregnancy Associated Mortality Review (PAMR). Findings and recommendations from case review are delivered to regional Community Action and Advisory Teams (CAATs), State Child Death Review, and the Louisiana Commission for Perinatal Care and the Prevention of Infant Mortality, also known as the Perinatal Commission, to produce and execute mortality prevention strategies throughout the state. Funding for Louisiana’s Sudden Unexpected Infant Death (SUID) Case Registry is an opportunity to build on past SUID surveillance work, further improve Louisiana’s ability to classify SUID deaths, and ensure more children celebrate their first birthday.
The Sudden Unexpected Infant Death (SUID) Case Registry Core Component 1 will maintain and improve current SUID surveillance and prevention activities in Louisiana, including timely case identification, data quality and collection, and case reviews consistent with the National Center for Fatality Review and Prevention (NCFRP). The SUID Case Registry grant aligns seamlessly with the BFH infrastructure and priorities: population-based MCH surveillance, data linkages and analyses, prevention, systems improvements, and policy advancement.
Above all, BFH seeks to decrease the incidence of SUID in Louisiana. With regard to data, BFH’s mortality surveillance team works to ensure a complete, comprehensive, population-based dataset that uses the CDC-provided categorization algorithm to produce category-specific SUID incidence. BFH uses these data to inform prevention, awareness, and health promotion strategies, improve policies and practices of systems serving families, and advance case investigation standards.
Through this funding opportunity, BFH will continue to build upon existing strategies and activities for SUID surveillance, as well as implement new strategies to improve data quality and prevent SUIDs. BFH will continue to identify, review, enter and conduct quality assurance on all Louisiana SUID cases, identify risk factors, and use innovative methods to share registry data that will prompt action among stakeholders across the state. Case Registry data are used to prevent SUID through legislative participation, provision of data to stakeholders, and informing collaborative evidence-based prevention efforts with partners such as the Department of Education, Department of Child and Family Services, Women, Infants, and Children (WIC), coroners, first responders, law enforcement, healthcare providers, and healthcare systems (Attachment 1).