Sudden Unexpected Infant Death (SUID) is one of the largest contributors to an infant mortality rate in Kentucky that has been higher than that of the nation for nearly a decade. In 2015, Kentucky’s infant mortality rate (IMR) per 1,000 live births was 6.8, compared to 5.9 in the Unites States. The three leading causes of infant death in calendar year 2015 in Kentucky were prematurity-related conditions (26%), SUID (22%), and birth defects (22%).
Purpose: Kentucky has made strides in developing systems to monitor the incidence and characteristics of SUID cases. The continuation of the SUID Case Registry (SUID core component 1) will result in enhancements of the timeliness and quality of SUID data, including the consistent identification and documentation of risk and protective factors associated with these deaths. Once collected and analyzed, these data will continue to be disseminated to stakeholders and utilized for implementation of targeted prevention efforts.
• Agencies that conduct infant death investigations will improve practices related to the collection and completeness of timely information on SUID;
• Local Child Fatality Review (CFR)teams and the State SUID Case Registry Program will develop and disseminate data briefs to increase community awareness by informing partners of the incidence and characteristics of SUID cases;
• Agencies that serve families will adopt and implement data-driven policies and practices that will prevent or reduce SUID;
• Improved policies and practices of systems serving families at higher risk for SUID; and
• Improved policies to standardize death reporting practices.
For timely identification of all resident SUID cases, Kentucky will:
• Train local CFR Coordinators on reporting expectations and implement process for electronic submission
• Implement modifications to the coroner reporting form and explore potential options for electronic submission
in order to review all SUID cases within 90 days of identification and categorize each SUID case at the Child Death Review meeting according to established algorithms, Kentucky will:
• Train identified personnel from all law enforcement agencies across the state in conjunction with the Department of Criminal Justice Training (DOCJT) Academy on death scene investigation and data collection; in conjunction with Death Scene Investigation training;
• Distribute SUID DSI kits that include a high visibility weighted doll, DSI protocols, a current SUIDI-RF, and a digital camera;
• Continue to utilize CDC data quality reports to assess accuracy; and
• Increase the number of local teams that categorize cases.
In order to enter case information within 30 days of review, Kentucky will:
• Modify the local CFR data collection tool and streamline the reporting process;
• Review the quarterly data quality summary provided by the CDC; and
• Continue internal monitoring to assess the impact of implemented strategies.
In order to conduct timely quality assurance measures on 100% of SUID cases, Kentucky will:
• Continue utilizing the Kentucky internal QA report on a quarterly basis to assess the quality of data entered into the CDR system; and
• Continue to utilize data provided by the CDC and identify and problem solve cases beyond 120 days.
In order to analyze, disseminate, and utilize SUID case registry data to inform data-driven practices and policies that will prevent SUID, Kentucky will:
• Utilize SUID data to develop reports based on SUID category;
• Disseminate reports to both internal and external partners;
• Track policy and practice changes through report outs at state SUID meetings; and
• Track prevention efforts using local meeting minutes.